1) Health isn't just about healthcare in a clinic space or exam room - it's about whole person health.
Acting like everyone has the social supports, ability, etc., to access transportation and other key items to attend appointments isn't thinking with someone's reality in mind.
We know from research (and common sense) how negatively having shit access to care.
When providers are upset about patient no-call-no-shows, they SHOULD be checking in with patients and seeing what happened.
Is there a barrier we haven't addressed yet? Is there a medical issue with memory?
Providers and other folks withing clinic spaces could actually make a HUGE impact in the lives of patients by, idk, checking on us when things didn't go 100%.
Private practices + types of US clinics (e.g. pain management) can set up rules about NCNS limits. Basically, if you miss 3 times, you're off their panel.
The NHS in the UK doesn't have that, but the growing private practice field there likely does.
Maybe she needs a change.
5. How is this ableist, elitist, etc?
Health conditions l and other life situations can bring on things like bring unable to manage time, having to rely on others for rides to appts or childcare, and more.
(No, walking distance doesn't automatically make it more accessible.)
Also, on the life front? There are also things you're not supposed to do within 24 hours of paps, like have sex.
Sometimes people get too into the moment or excited and forget that, until shortly before an appt.
Would it be frustrating for this to all happen on the same day? Could be, sure.
Instead, one could choose to see it as patients facing barriers that need to be corrected or making decisions that keep them safer today.
I'd much rather lead toward the latter.
Also?
we
are
still
in
a
global
pandemic
Maybe someone found out they might have been exposed to COVID + didn't want to share that info with someone being judgmental.
I often will say I forgot or spaced in those situations because no one actually wants to hear my answer. They want to point fingers.
What do we do moving forward?
Well, providers need therapists - especially with the pandemic.
Clinics need to be working off PDCA cycles and evaluating new workflows with patient + family input.
Better appt reminders need to be set up, too.
Coming on Twitter as a provider and complaining does nothing to address the situation.
In fact, it often widens the gap between providers and patients on social media due to shitty hot takes.
We don't need more walls and silos.
Per usual, here's a note with my reflexivity statement and where I'm coming from
I experience a lot of Little-ness when my POTS or other conditions are acting up. If I'm honest, a part of me is always Little - it just adjusts due to all the factors.
I shouldn't have to avoid certain spaces because of this.
Now, with all these cameras focused on my face
You'd think they could see it through my skin
They're looking for evil, thinking they can trace it, but
Evil don't look like anything
Evil don't look like anything
PS: this was the first song that I learned on my ukulele that wasn't in a random uke song book.
1) The song itself is *chef's kiss* 2) The lyrics? 🔥 3) Okkervil River songs like this are so perfect for harmonizing
Why has @UofUNeurology assumed patients with #POTS may not also be providers or otherwise involved in healthcare?
Or seemingly taken into account that we often have to help others get diagnoses and, therefore, should be getting this same info?
Why don't I get access to sessions like "Headache, Chronic Pain, and Joint Hypermobility in Dysautonomia" but instead get "Non-Pharmacological and Lifestyle Treatment Approaches for Dysautonomia" when patients are already gaslit with that enough?