Let's talk about why, although this may be frustrating, it is ableist, classist, elitist, and more.

It's also really bad doctoring.

#GiveUsThisDayOurDailyThread
Just in case... Tweet from Dr rosemary Leonard in the nhs @DrRosemaryL I did
1) Health isn't just about healthcare in a clinic space or exam room - it's about whole person health.

Acting like everyone has the social supports, ability, etc., to access transportation and other key items to attend appointments isn't thinking with someone's reality in mind.
We know from research (and common sense) how negatively having shit access to care.

Here's a great example RE mental health.

theatlantic.com/ideas/archive/…
Here's that link sans paywall

What American Mental Health Care Is Missing

12ft.io/proxy?q=https:…
I literally wrote my master's capstone around how the ways we think about and measure patient engagement aren't rooted in reality.

I mean, they don't even acknowledge racism. Hello.

academia.edu/33840228/EFFEC…
When providers are upset about patient no-call-no-shows, they SHOULD be checking in with patients and seeing what happened.

Is there a barrier we haven't addressed yet? Is there a medical issue with memory?
Providers and other folks withing clinic spaces could actually make a HUGE impact in the lives of patients by, idk, checking on us when things didn't go 100%.

It's not rocket science.

2) Another (related) point is the issue of providers treating patients like shit for being human.

I'm sorry, but yall ignore our symptoms, gaslight us, and act like we should be refused care if we NCNS. And we're the awful ones here?
Providers, if you've begged us to recall that you're human, too, ever?

I do not want to see you get upset like this on social media and throw all these patients in the trash, either.

Work on finding a therapist that treats those in healthcare esp if able. Don't yell on here.
If I followed a provider of mine on Twitter and they yelled about me missing an appointment, even in bulk like this?

I'd be searching for new stuff or avoid rescheduling as long as humanly possible, esp if you're looking at my bits. Ugh.
3) There's been majorly shit weather in the UK?

Wisconsin providers would've called and rescheduled appointments at that point. Not yelled at people (even indirectly) about not coming in.
See also, doc felt the need to justify her ranting after people reminded her about the weather.

Still is shit. re yesterdays surgery - weather was dull and grey, no wind.
4. This is an important issue to consider - when doc says 'consequences' what does that mean?

How does she want to see patients ‐punished‐ during a pandemic for NCNS with a provider with this attitude?

Private practices + types of US clinics (e.g. pain management) can set up rules about NCNS limits. Basically, if you miss 3 times, you're off their panel.

The NHS in the UK doesn't have that, but the growing private practice field there likely does.

Maybe she needs a change.
5. How is this ableist, elitist, etc?

Health conditions l and other life situations can bring on things like bring unable to manage time, having to rely on others for rides to appts or childcare, and more.

(No, walking distance doesn't automatically make it more accessible.)
Also, on the life front? There are also things you're not supposed to do within 24 hours of paps, like have sex.

Sometimes people get too into the moment or excited and forget that, until shortly before an appt.
Would it be frustrating for this to all happen on the same day? Could be, sure.

Instead, one could choose to see it as patients facing barriers that need to be corrected or making decisions that keep them safer today.

I'd much rather lead toward the latter.
Also?

we
are
still
in
a
global
pandemic
Maybe someone found out they might have been exposed to COVID + didn't want to share that info with someone being judgmental.

I often will say I forgot or spaced in those situations because no one actually wants to hear my answer. They want to point fingers.
What do we do moving forward?

Well, providers need therapists - especially with the pandemic.

Clinics need to be working off PDCA cycles and evaluating new workflows with patient + family input.

Better appt reminders need to be set up, too.
Coming on Twitter as a provider and complaining does nothing to address the situation.

In fact, it often widens the gap between providers and patients on social media due to shitty hot takes.

We don't need more walls and silos.
Per usual, here's a note with my reflexivity statement and where I'm coming from

graysonschultz.com/reflexivity/
You can find me and my work across socials and the internet via Carrd

graysongoal.carrd.co

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More from @GraysonGoal

Feb 22
Reminder for my fellow #MCAS folks: First-generation NSAIDs help add more histamines to your body.
For those wondering more about NSAIDs, here's a list.

*Note: not all NSAIDs do this, so don't fret! COX-2 inhibitors do not and actually work to help limit prostaglandins.

medicinenet.com/nonsteroidal_a…
Read 7 tweets
Oct 10, 2021
[ Little discussion ]

Hard agree.

I experience a lot of Little-ness when my POTS or other conditions are acting up. If I'm honest, a part of me is always Little - it just adjusts due to all the factors.

I shouldn't have to avoid certain spaces because of this.
[ more on Little life and illness/disability ]

I've learned more since writing this and should write an update tbh.

chronicsex.org/2020/08/pots-l…
[ more on Little life and illness/disability ]

I decided to lean into what it would look like to embrace my Little side more instead of shame it.

It's made a huge difference in how often I enter Little mode in ways I described above.
Read 4 tweets
Oct 10, 2021
For #WorldMentalHealthDay I want to see more discussions around how systems of oppression - like racism - continue to harm folks.

medicalnewstoday.com/articles/effec…
#WorldMentalHealthDay

If you're Black and looking for mental health resources that aren't so f**king white?

1n5.org/racism-and-men…
Read 12 tweets
Oct 10, 2021
When I started @ChronicSexChat six years ago, I could have never imagined where my life would lead because of that decision.

I've been spending the little extra time I have lately making some much-needed updates to the site.
New content is coming, including info on bias, better organized info, and some fun new ideas.

I still need to make some tweaks, but here's one example.

chronicsex.org/accessibility/
Another example?

This new page on ableism.

chronicsex.org/ableism/
Read 5 tweets
Oct 9, 2021
This is part of it.

The other part is that folks think someone who did something evil must be inherently evil, that they are monsters.

In reality, the lack of nuanced discussion of how evil acts and operates in the world is tied to othering which is tied to white supremacy.
As @OkkervilRiver said,

Now, with all these cameras focused on my face
You'd think they could see it through my skin
They're looking for evil, thinking they can trace it, but
Evil don't look like anything
Evil don't look like anything

PS: this was the first song that I learned on my ukulele that wasn't in a random uke song book.

1) The song itself is *chef's kiss*
2) The lyrics? 🔥
3) Okkervil River songs like this are so perfect for harmonizing
Read 29 tweets
Oct 9, 2021
Here's the only thing I don't get here...

Why are we separating HCPs and patients? Why aren't patients getting access to the Friday sessions with their registration?

What's up with that?

Why has @UofUNeurology assumed patients with #POTS may not also be providers or otherwise involved in healthcare?

Or seemingly taken into account that we often have to help others get diagnoses and, therefore, should be getting this same info?
Why don't I get access to sessions like "Headache, Chronic Pain, and Joint Hypermobility in Dysautonomia" but instead get "Non-Pharmacological and Lifestyle Treatment Approaches for Dysautonomia" when patients are already gaslit with that enough?
Read 6 tweets

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