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Feb 22 • 10 tweets • 3 min read
Reminder for my fellow #MCAS folks: First-generation NSAIDs help add more histamines to your body.
For those wondering more about NSAIDs, here's a list.

*Note: not all NSAIDs do this, so don't fret! COX-2 inhibitors do not and actually work to help limit prostaglandins.

medicinenet.com/nonsteroidal_a…
Here's another link:

spine-health.com/treatment/pain…
Cox-2 inhibitors include:
-Celebrex (celecoxib)
-Bextra (valdecoxib)
-Consensi (amlodipine/celecoxib)
-Elyxyb (celecoxib)
-Vioxx (rofecoxib)

Sadly, Vioxx bit the dust.
npr.org/2007/11/10/547…
What we know about nonsteroidal anti-inflammatory drug hypersensitivity
ncbi.nlm.nih.gov/pmc/articles/P…
tmsforacure.org/treatments-2/#…
Common Mast Cell Degranulation Triggers

mastokids.org/degranular-list
Yes, there are people can tolerate NSAIDs okay.

This is more of a heads up that those could be making MCAS symptoms worse.

Please discuss with a provider and/or others you collaborate with on your care before making changes.
Also, I'm many things but not a doctor.

graysonschultz.com/reflexivity
For more about me, my work, and my weekly newsletter:

graysongoal.carrd.co

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More from @GraysonGoal

Grayson (he/him) Profile picture
Feb 20
Let's talk about why, although this may be frustrating, it is ableist, classist, elitist, and more.

It's also really bad doctoring.

#GiveUsThisDayOurDailyThread
Just in case... Tweet from Dr rosemary Leonard in the nhs @DrRosemaryL I did
1) Health isn't just about healthcare in a clinic space or exam room - it's about whole person health.

Acting like everyone has the social supports, ability, etc., to access transportation and other key items to attend appointments isn't thinking with someone's reality in mind.
Read 25 tweets
Grayson (he/him) Profile picture
Oct 10, 2021
[ Little discussion ]

Hard agree.

I experience a lot of Little-ness when my POTS or other conditions are acting up. If I'm honest, a part of me is always Little - it just adjusts due to all the factors.

I shouldn't have to avoid certain spaces because of this.
[ more on Little life and illness/disability ]

I've learned more since writing this and should write an update tbh.

chronicsex.org/2020/08/pots-l…
[ more on Little life and illness/disability ]

I decided to lean into what it would look like to embrace my Little side more instead of shame it.

It's made a huge difference in how often I enter Little mode in ways I described above.
Read 4 tweets
Grayson (he/him) Profile picture
Oct 10, 2021
For #WorldMentalHealthDay I want to see more discussions around how systems of oppression - like racism - continue to harm folks.

medicalnewstoday.com/articles/effec…
#WorldMentalHealthDay

If you're Black and looking for mental health resources that aren't so f**king white?

1n5.org/racism-and-men…
For AAPI folks

#WorldMentalHealthDay

verywellmind.com/mental-health-…
Read 12 tweets
Grayson (he/him) Profile picture
Oct 10, 2021
When I started @ChronicSexChat six years ago, I could have never imagined where my life would lead because of that decision.

I've been spending the little extra time I have lately making some much-needed updates to the site.
New content is coming, including info on bias, better organized info, and some fun new ideas.

I still need to make some tweaks, but here's one example.

chronicsex.org/accessibility/
Another example?

This new page on ableism.

chronicsex.org/ableism/
Read 5 tweets
Grayson (he/him) Profile picture
Oct 9, 2021
This is part of it.

The other part is that folks think someone who did something evil must be inherently evil, that they are monsters.

In reality, the lack of nuanced discussion of how evil acts and operates in the world is tied to othering which is tied to white supremacy.
As @OkkervilRiver said,

Now, with all these cameras focused on my face
You'd think they could see it through my skin
They're looking for evil, thinking they can trace it, but
Evil don't look like anything
Evil don't look like anything

PS: this was the first song that I learned on my ukulele that wasn't in a random uke song book.

1) The song itself is *chef's kiss*
2) The lyrics? 🔥
3) Okkervil River songs like this are so perfect for harmonizing
Read 29 tweets
Grayson (he/him) Profile picture
Oct 9, 2021
Here's the only thing I don't get here...

Why are we separating HCPs and patients? Why aren't patients getting access to the Friday sessions with their registration?

What's up with that?

Why has @UofUNeurology assumed patients with #POTS may not also be providers or otherwise involved in healthcare?

Or seemingly taken into account that we often have to help others get diagnoses and, therefore, should be getting this same info?
Why don't I get access to sessions like "Headache, Chronic Pain, and Joint Hypermobility in Dysautonomia" but instead get "Non-Pharmacological and Lifestyle Treatment Approaches for Dysautonomia" when patients are already gaslit with that enough?
Read 6 tweets

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