1) Health isn't just about healthcare in a clinic space or exam room - it's about whole person health.
Acting like everyone has the social supports, ability, etc., to access transportation and other key items to attend appointments isn't thinking with someone's reality in mind.
I experience a lot of Little-ness when my POTS or other conditions are acting up. If I'm honest, a part of me is always Little - it just adjusts due to all the factors.
I shouldn't have to avoid certain spaces because of this.
Now, with all these cameras focused on my face
You'd think they could see it through my skin
They're looking for evil, thinking they can trace it, but
Evil don't look like anything
Evil don't look like anything
PS: this was the first song that I learned on my ukulele that wasn't in a random uke song book.
1) The song itself is *chef's kiss* 2) The lyrics? 🔥 3) Okkervil River songs like this are so perfect for harmonizing
Why has @UofUNeurology assumed patients with #POTS may not also be providers or otherwise involved in healthcare?
Or seemingly taken into account that we often have to help others get diagnoses and, therefore, should be getting this same info?
Why don't I get access to sessions like "Headache, Chronic Pain, and Joint Hypermobility in Dysautonomia" but instead get "Non-Pharmacological and Lifestyle Treatment Approaches for Dysautonomia" when patients are already gaslit with that enough?