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Diana Zicklin Berrent Profile picture
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Feb 23 • 6 tweets • 2 min read
I just heard from two women with #LongCovid, both in their early 40's, just diagnosed with early onset Alzheimers.

They can't be the only ones.

If COVID leads to neurodegenerative disease... we are totally fcked.

Support Long COVID research NOW. Before it's too late.
m.jpost.com/health-and-wel…
medpagetoday.com/neurology/gene….
npr.org/sections/healt…
Can the Flu Contribute to Parkinson’s Disease? nyti.ms/33xM5eX
reuters.com/business/healt…

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More from @dianaberrent

Diana Zicklin Berrent Profile picture
Feb 20
"The fact is that they are never going to be able to accommodate the number of people who are suffering from long COVID," said @dianaberrent...
1/
'It never seemed to end': Family with long COVID-19 pleads for treatment as surge wanes timesunion.com/news/article/L… via @TimesUnion
...founder of @Survivor_Corps, an advocacy group of over 200,000 members with current, chronic or past COVID-19.
2/
“When we're talking about #LongCovid, I want you to think abt our members who are in their early 30s, who were athletes, who were marathon runners, at the height of their career, who are now in wheelchairs; they're on permanent feeding tubes, they are disabled,” Berrent said."
3/
Read 8 tweets
Diana Zicklin Berrent Profile picture
Feb 17
"Diana Berrent is a Maryland resident who founded @Survivor_Corps, which is an online network of more than 200,000 people worldwide that connects survivors with resources and each other. She said the need is urgent."
1/
 wbaltv.com/article/study-… @wbaltv11 @kateamaraWBAL #LongCovid
"We need a national, long COVID suicide hotline yesterday," Berrent said. "Mental health is a huge part of this, but I also want to be clear: There are neurological issues going on that need to be treated medically."
2/
'She said she is frightened by the long-term repercussions for pediatric COVID-19 patients."

3/
Read 4 tweets
Diana Zicklin Berrent Profile picture
Feb 8
Could antihistamines help relieve #LongCovid for some?

This is a small study but it's supported by real world evidence and needs further investigation.
1/
 gizmodo.com.au/2022/02/antihi…
"These cases were even brought to the attention of these researchers, primarily from the University of California, Irvine, through members of Survivor Corps, a long covid advocacy group hosted on Facebook."
@Survivor_Corps @UCIrvineHealth

2/
"But near as they can tell, these are the first case reports in the literature to document the potential of antihistamines for patients with long covid, also known as postacute sequelae of SARS-CoV-2, or PASC."

3/
Read 4 tweets
Diana Zicklin Berrent Profile picture
Feb 8
A real life story about why we shouldn't get rid of the mask mandate:

1/
These kids played a HS basketball game last Friday. In NYC.

They were not allowed to shake hands after the game but were permitted to play with the masks under their chins.
The kid in the back left tested positive Saturday.

2 more tested positive on Sunday.

2 more Monday.

My friend's kid in the front left just tested positive this afternoon.

That's 6 from one team. So far. That we know of.
Read 6 tweets
Diana Zicklin Berrent Profile picture
Jan 24
One in ten kids gets #LongCovid. That should shake you to your core.
salon.com/2022/01/22/the…
"One study showed that as many as 52% of teens and young adults between ages 16 and 30 may experience lingering symptoms 6 months after having COVID." @Salon
"Doctors and researchers are anticipating more #LongCovidKids cases stemming from the omicron variant, given the statistical magnitude of the spread, and the increase in pediatric infections."
Read 5 tweets
Diana Zicklin Berrent Profile picture
Jan 21
"As I've talked to people who are experiencing this, there are some who just find no peace. Their bodies are no longer under their control and these symptoms are creating a living hell for them," - @hmkyale
1/
 #LongCovid @TODAYshow
today.com/health/do-coro…
"I've talked to maybe five or 10 people who have contemplated taking their lives because the symptoms are so severe."
2/
"The idea for the paper originated with the harrowing experience of Heidi Ferrer, a television & film writer who "had severe manifestations of the sensations of vibrations" the authors wrote. She found the symptoms intolerable and died by suicide at 50 in May 2021."
3/
 @NickGuthe
Read 6 tweets

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