Richmond Stace - The Pain Coach Profile picture
Feb 26, 2022 7 tweets 4 min read Read on X
With chronic conditions such as persistent pain, fibromyalgia, CFS, ME and more recently Long Covid, people are still dismissed when their tests show nothing of note.

Cont… 👇 #LongCovid #MECFS #Fibromyalgia #pain #thepaincoach Image
The idea that a negative test (or tests) means that there is nothing wrong is ignoring the plain fact that there is something wrong.

👇
The person has just explained how they are feeling. Have they been heard? Many haven’t and that is unacceptable. Even some doctors have not been believed by other doctors!

👇
The result is only useful for that specific test. And maybe many tests have been negative. They can still be the wrong tests. Why has that been so hard for medicine to understand?

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Fortunately this is changing slowly as the Long Covid community speaks up and continues to push for deeper understanding. It’s coming with some excellent research.

amp.theguardian.com/commentisfree/… by @resiapretorius

👇
But what we need is society and medicine to move on from its dualist approach, to see people first and to believe them. There needs to be shift in belief. This is what will being sustainable change and less suffering.

#thepaincoach richmondstace.com

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More from @painphysio

Apr 1, 2022
Most people accept that the feeling of love exists.

Each person having their own experience.

That love exists then, despite being invisible.

So why when people say they are in pain, is there disbelief?

Why are some people dismissed?

🧵 #thepaincoach #chronicpain
If they said that they were hungry, would they be believed? You cannot see hunger.

If you laugh, where is the funny? You can’t see it.
What is it about pain that makes some people not take the person describing their experience seriously?

It is most certainly not an issue with the person describing their pain.

It is certainly a limitation of the disbelieving person.
Read 5 tweets
Mar 27, 2022
.@Womenworking Essential reading for:

All in healthcare
All in education
All employers
All leaders

All.

@gabriellecj
@emilyhwilson

(1)
Having worked with so many women suffering persistent pain, it has long been an area I wanted to understand and have been studying.

The narratives, the biology, the sociocultural dimensions and importantly, how they interact and unify as the lived experience.

(2)
Read 4 tweets
Mar 27, 2022
What the biomedical model does… 🧵

Well or unwell.

Mind or body.

Healthy or sick.

#thepaincoach #chronicpain

1. #thread
Fortunately more and more clinicians are noticing that despite being trained to think this way, it does not work. Why?
Because it’s not the experience we have as humans.

Take pain as an example.
Read 9 tweets
Mar 27, 2022
Real.

#thread 🧵

Many people have been led to believe that we need to look for something to blame for our pain.

A single cause.

A body part or system perhaps.

Blame the bit that hurts.

#thepaincoach #chronicpain

1.
Yet it is not that bit that is in pain. You are, the person.

The person feels pain, not the body part or the brain.

We want something tangible to blame. Something you can point at—‘there it is; the cause.’
But that’s not how it works.

The body state is one thing: objective. Our experience of the body is another: subjective.

When you have this insight, you can understand your experience. How pain and other feelings vary and change. Nothing is permanent.
Read 7 tweets
Mar 14, 2022
Why does my pain persist?

There is a kind of stuckness.

Not that each pain experience is the same — this cannot be, because each moment is new.

A #thread 🧵by #thepaincoach #chronicpain 👇
There was an expectation of getting better but the reality was different. Things you tried did not work. Perhaps your timelines were inaccurate: it often takes longer than you think.
There comes a point when the expectation switches to pain rather than getting better.
Read 7 tweets
Mar 12, 2022
You are doing your best

Often, it’s easy to listen to the self critic.

And harder to acknowledge that you are doing your best.

#thread 🧵
#thepaincoach #chronicpain
Considering the circumstances — what is going on for you right now?

This gives perspective. A wider view.

One that is more realistic and less driven by lofty expectations.
You are doing your best with what you have.

You may need more.

For instance, guidance, support, or encouragement.
Read 6 tweets

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