"In Australia, the #RACGP continues to recommend that GPs prescribe #GET and #CBT for ME. Fatigue clinics continue to operate, risking continued harm to ME patients and people with other post-viral illnesses, including #LongCovid" #mecfstinyurl.com/4x2eshha
"What I didn’t know at the time, was that ME patients were fighting to interrogate the notion that #GET and #CBT – were effective.
"It turns out, a group of psychiatrists in the UK had altered the evidence in the major scientific study advocating the use of GET and CBT for ME, changing the thresholds for what counted as recovery."
"David Tuller, a lecturer in public health at the University of California Berkeley, said the study was “not science”.
"Psychology academic Carolyn Wilshire said,“Claims were made regarding the benefits of these therapies that went well beyond what can be justified by the data.”
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"In Britain, psychiatrists spent over a decade painting the disease as psychosomatic, going so far as to tamper with data in a major clinical trial published in The Lancet" #mecfs#pacetrial tinyurl.com/3ym6b93a
"Which falsely stated behavioural therapy and a gradual increase in exercise, improved symptoms.
It took activists years of campaigning to have the trial discredited, delaying efforts to research the true cause of the disease"
"In Australia, general practitioners look to guidance issued by the Royal Australian College of Physicians (#RACP) to treat and manage their patients. The RACP clinical guidelines on #MECFS haven’t been updated in 20 years"