"Retha is a remarkable person who saw a need and moved forward to fill that need. After becoming ill with #MECFS she formed a Facebook support group in 2012." #fundraising
gogetfunding.com/imhopeful-reth… "She became aware of the dire needs of patients for hope, companionship, financial assistance, medical treatment, special care facilities, and basic living necessities. She realized something had to be done for #MECFS in #SouthAfrica and founded The @mecfs_sa"

Things that are wrong.. I would say a lot

"Some considerations and limitations are important to discuss. First, given the nature of the intervention, double blinding was not possible. " #longcovid dailymail.co.uk/health/article… "Second, additional measures to further characterise participants might have been useful, such as objective physical performance measures, actigraphy, breathing pattern assessment, and baseline lung function testing."

"Data on l#ongCovid, reaches from the past and further into the future, as scientists attempt to gain a better grasp of the collateral damage the virus has left in its wake after infecting roughly 60 percent of the US population in the past two years."

tinyurl.com/4pk4w2pr " Some of those experts are still keeping tabs on cases as a general sign of the trends on the ground and because of the potential effect of long Covid to have a lasting effect in even mild cases." #longocovidkids

“Patients and patient advocacy groups have brought attention to the profound disability associated with post-Covid condition” #LongCovid
tinyurl.com/yf832nxd “Children and adults with a positive #COVID19 test were more likely to receive a diagnosis for a new condition or have new symptoms in the 5 months after acute infection compared to those who tested negative for Covid-19" #LongCovidKids

"Overlooked among the falling fatality statistics and high (apparent) recovery rates from #COVID19 is the recognition that “long haul COVID” or just “#longCOVID” may be a long-term consequence of a COVID infection for millions."disq.us/t/4782elp "We now know that almost 60% of the US population (including 75% of children and adolescents) has been infected with COVID-19 (as of February 2022)." #LongCovidKids

"Kara Gormont is the former Chief of Staff for the Defense Health Agency. She dedicated her career to helping keep service members healthy"

"Gormont developed #longCOVID in November 2020" tinyurl.com/597cs5br "She learned first hand that the military at the time had no process to deal with it."

"I truly felt very abandoned by the healthcare system that I had at that time given 28 years of my life to," Gormont said. "And nobody believed me, nobody believed that I was sick"

"In Britain, psychiatrists spent over a decade painting the disease as psychosomatic, going so far as to tamper with data in a major clinical trial published in The Lancet" #mecfs #pacetrial
tinyurl.com/3ym6b93a "Which falsely stated behavioural therapy and a gradual increase in exercise, improved symptoms.

It took activists years of campaigning to have the trial discredited, delaying efforts to research the true cause of the disease"

"In Australia, the #RACGP continues to recommend that GPs prescribe #GET and #CBT for ME. Fatigue clinics continue to operate, risking continued harm to ME patients and people with other post-viral illnesses, including #LongCovid" #mecfs tinyurl.com/4x2eshha "What I didn’t know at the time, was that ME patients were fighting to interrogate the notion that #GET and #CBT – were effective.