I’m noticing many friends, colleagues, acquaintances developing strange, new symptoms yet not attributing them to Covid.
This is eerily reminiscent of my experience w #Lyme; migrating, hard-to-describe, bizarre symptoms that no one has answers for that you just pray will stop.
I feel strongly this needs to be addressed and that the medical world needs to consider not only persistent Covid, but other common reactivated infections other than EBV. The # of tick-borne disease pts who crashed after Covid but got better w retreated shld not be discounted.
I would have my docs look for common persistent pathogens like #Lyme, #bartonella, #EBV, #babesia, etc and treat empirically if symptoms are suggestive w/o + tests, since testing for most of these (not EBV) is terrible.
I see very, very few doctors who are even aware of this possibility and many, many patients suffering because of it. Please. Educate your doctors. Advocate for yourselves. No one can do it better.
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It’s weird Bc music/ TV business protocols have been REALLY good. Lots of testing, hepa filters, KN95s or better required. Hollywood knows #COVIDisAirborne.
THIS ⬆️ , however, makes NO sense and is a huge mistake.
When @StevePhillipsMD & I were in midst of press tour for our book CHRONIC, which is abt persistent infections that cause chronic/ psych illness (including Covid), we were told by nat’l news show that they’d love to have us on but we can’t give info counter to @CDCgov@NIH.
We explained to producer how much they were misleading public, gave multiple science-based examples.
News producer said, “OH! I KNOW! WE KNOW! We just can’t have you say it on TV.”
We opted not to do the show.
They wanted us to NOT say:
#CovidIsAirborne & ALL need N95s, vaccines-only won’t work, no herd immunity w Covid, people need EARLY TREATMENT, like #Lyme, Covid is chronic in a % & THAT is a big cause of #LongCovid.
Some of us won’t sell our souls to promote our careers.
My biggest lesson after almost losing my life to #Lyme ❤️ failure after 12 dogmatic NYC docs failed to recognize what was wrong, gaslighted me, & implied my serious symptoms were in my head…
NO ONE WILL DECIDE MY FATE.
I was bitten by a tick in my sleep in LBI, NJ, July 4th weekend 2014, there for friend’s wedding.
Came back to nyc, woke up w crushing head/ neck ache. Little did I know “summer flu” is usually #Lyme.
Few days later, was feeling a bit better but saw bite & rash on shoulder.
Walked to urgent care. They said it was #Lyme, told me not to google it 😑, & that with 3 weeks of doxycycline, I would be 💯 fine.
My gut feeling said something was very wrong. But I wanted to believe.
I followed up w an @IDSAInfo doc from NYU to be sure.
They claim to have little insight into what’s causing this calamitous “syndrome” affecting millions globally. Perhaps @NIH should stop blocking research into pathogen persistence in tissue and they’d have this mystery solved.
I call it what it is; chronic COVID.
Semantics inform treatment. Let’s stop with the “post-viral” rhetoric when we are most def dealing with active, ongoing infection(s) in many w/ ongoing symptoms.
As is the case w chronic #Lyme & other stealth, persistent infections.