Tania Melnyczuk Profile picture
Jun 12 35 tweets 13 min read
AUTISM [METATHREAD] 🧵

Below are links to some of my threads related to autism, autistic health, and advocacy. I'll also add a few threads by other people.

Several threads are unfinished or have perpetual additions. A picture of fractals which...
LINKED THREAD:
Words of nonspeaking autistic people

#ListenToNonspeakers

LINKED THREAD: Treating sensory overload

LINKED THREAD:
Medical gaslighting, medical ableism and medical malpractice

#MedicalGaslighting #MedicalMalpractice

LINKED THREAD:
The double empathy and double camouflaging problem

#DoubleEmpathy #AutisticMasking

LINKED THREAD:
Boycott autism research (unless...)

#BoycottAutismResearch

LINKED THREAD: Poor stakeholder engagement

LINKED THREAD:
Treating medical problems that commonly occur in autistic people

LINKED THREAD:
Heritability and causes of autism

LINKED THREAD: My 4 Focus Areas for Autistic Advocacy - Video series (2019)

LINKED THREAD:
For speaking autists, on learning from and collaborating with nonspeakers and (other) multimodal communicators who use little to no speech

LINKED THREAD:
Amplifying autistic people who rely on AAC (Augmentative and Alternative Communication)

LINKED THREAD:
Rise of the nonspeaking autistic revolution in South Africa

LINKED THREAD:
Rights-based autistic advocacy in Africa, and the UN Convention on the Rights of People With Disabilities

#CRPD (#UNCRPD)

LINKED THREAD:
Social skills training (satirical)

LINKED THREAD:
About the short film LISTEN, made by and with nonspeaking autistic people

#ListenToNonspeakers

LINKED THREAD:
AAC (Augmentative and Alternative Communication), apraxia, and how some nonspeaking autistic people got access to communication

LINKED THREAD:
@A_Silent_Child explains their complex communication disability

LINKED THREAD: Autism and 'challenging behaviour'

LINKED THREAD:
Autism and Rejection Sensitive Dysphoria (RSD)

LINKED THREAD: Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections (PANDAS) is sometimes misdiagnosed as autism

#PANSPANDAS
LINKED THREAD:

Autism, Borderline Personality Disorder (BPD) and Temporal Lobe Epilepsy (TLE)

LINKED THREAD OF REPLIES:
CCI (craniocervical instability) and brainstem dysfunction in ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome)

#MECFS #LongCovid

LINKED SUBTHREAD:
The concept of intersectionality

LINKED THREAD: About trigger warnings

LINKED THREAD:
How we retraumatise each other within the autistic community

LINKED THREAD:

Research on allism and ableism (satirical, alludes to the Lancet report proposing 'Profound Autism' as a new diagnostic category)

LINKED THREAD:

The autism diet
(TL;DR: There isn't one)

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More from @ekverstania

Jun 14
Now that the House has voted to ban the shock torture of disabled people at the Judge Rotenberg Center, we need to take a look at something specific relating to that vote.

28 Republicans voted AGAINST the ban on torturing disabled people in ABA at the JRC.

They include some most notably implicated in crimes to overthrow the US government: Lauren Boebert, Matt Gaetz, Madison Cawthorn, Marjorie Taylor Greene.

ASK WHY.

Ask why these specific politicians are so invested in maintaining the option to torture people by means of electric shocks, to control their behaviour. A jumbled network of arrows...
Read 26 tweets
Jun 14
For many years, powerpeople have blabbed about 'evidence-based (early) intervention for autism'.

If you don't know what they're on about, you'd think it seems sound and sensible. After all, who'd want to do something for which there's little or no evidence of success?

But...
There's something foundational missing from a lot of these 'evidence-based interventions for autism':

A rights-based approach to autistic people.
I've had people (including #ActuallyAutistic people who studied the evidence deeply) argue with me about the neutrality of science, saying science is unbiased and doesn't favour a particular outcome, saying even undeclared conflicts of interest among the researchers don't matter.
Read 19 tweets
Jun 13
This Cape Town rain sounds murderous outside now. Hey, everyone who's sleeping dry, so many people will have homes washed away by tomorrow. If you can afford it, please get ready to donate to @GiftoftheGivers or any other agency that will be doing disaster relief. #CapeTownFlood
Oh drat, our drain just started making a noise INSIDE the house. We're in the middle of a sloped road, I wonder what's happening at the bottom of the slope.
This is the sound of the rain, heard from inside the house. #CapeTownStorm
Read 5 tweets
Jun 12
This reminds me of autistic people being in ABA to learn to tie their shoelaces when they are already wearing the solution: slip-on shoes.
By the way, if you have a problem putting on slip-ons, there's a motor hack for that; and if you DO want to wear laces and want an easier method to tie them, there's a motor hack for that too, which reduces the steps you will need to learn and practice. i-asc.org/motoriety-for-…
The video with the shoelace hack is too quick for some people to follow, but that video is aimed also at S2C Practitioners and CRPs who are trained to break down the steps for a client and help them learn the sequence.
Read 15 tweets
Jun 7
GALLERIES, RAMBLINGS AND LEARNING ADVENTURES [METATHREAD] 🧵 Twisted convoluted stems of a succulent plant
Some of the early or mid-thread photos in these threads don't gave alt-text. The latest ones do.

In some instances (especially in threads with accidental forks), the link doesn't go to the first tweet in the thread.
I also have an art account here:

twitter.com/alphabetania
Read 8 tweets
Jun 6
Theocratic fascist Matt Walsh and right-wingers like him want to make it illegal for doctors to perform gender-affirming surgery for trans adults who request it.

As a cisgender person, I call on other cis people to fight stand up for trans rights against people like Matt.
By the way (in case you thought I was just throwing in an ad hominem), this guy calls himself a theocratic fascist.
Trans people in my country 🇿🇦 experience many barriers, but gender-affirming surgery is LEGAL for trans people.
Read 24 tweets

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