Thread by @hope411adcock

This is #HealthCareInAmerica where #PatientCenteredCare is sacrificed to avoid unwarranted 🎯 of Medical Professionals.

@aander1987 @fightpaindaily @PainNewsNetwork @purplemamabear
@PainPtFightBack @StefanKertesz @ChadDKollas @DrJuanHC @LeoBeletsky

hope411.org/news-briefs/pa…

The options for patients deprived of medical assistance to maintain their health are untenable.

For patients in my daughter's situation where her Seizure RX is involved the outlook is bleak. With less than 10-days remaining to resolve the situation her health & safety are

uncertain.

Will she survive? That's our main primary concern.

Will she die of medical neglect or be forced to attempt to self-medicate via the illicit market.

Forced to play a deadly game where all potential *options* may be cost her her life.

"For patients with rare disease, complex chronic illnesses and disabilities navigating the health care system has become a fight for survival.

Patients experience systemic disability discrimination and bias when attempting to obtain or retain access to treatments and

medications that are critical to maintaining their health.

Due to interference with the practice of medicine, patients are being forced to play a dangerous, potentially deadly game of medical roulette. It’s a game that patients don’t want to play, but there are no

alternatives for those with multiple medical conditions who require controlled substances to manage their health. They are coerced into agreeing to discontinue a vital medication as a condition of retaining or obtaining treatment for a debilitating medical condition.

In some cases, when a patient cannot discontinue a medication without severe adverse, potentially life threatening consequences, they are discharged from the medical practice."