Rose Matthews Profile picture
Jun 28, 2022 15 tweets 5 min read Read on X
#Thread
A personal (very late diagonised) #ActuallyAutistic perspective on #change.
For me coming to understand myself better as a result of a very late #autism diagnosis led to some very gradual but significant changes.
Three and a half years on things are very different.
1/
This isn’t the result of a ‘throw everything up in the air and see where it lands’ kind of change, although I’ve done a fair bit of that in my time.
What has been happening is that I have been getting to know myself - the truly autistic ‘me’, not the people pleasing version.
2/
This takes time. There’s no rushing it. It has taken even longer to accept and appreciate essential autistic qualities and perspectives that the neurotypical world regards as defective or odd.
But very gradually, like the changing of the seasons, my life is being transformed.
3/
One of the things that made me think I couldn’t possibly be autistic was my enthusiasm for change.
I delight in the possibility of things becoming different.
For me change means energy, life and transformation.
Not being stuck in the mud of stolid ‘sameness’.
Change is vital.
4/
I was in ‘the change’ when I bought an old neon sign from a penny arcade spelling change in large red letters.
The glow from it was so intense I felt it washing over me.
It referenced my perimemopausal woes and the career flux I found myself in.
Change. Dangerous and exciting.
5/
There’s a career theory about success being dependent on ‘staying on the bus’.
To achieve your maximum potential you mustn’t keep chopping and changing.
I sometimes barely took a seat on the bus before being ousted by someone who objected to me being there, and bullied me off.
6/
It has been painful coming to terms with this.
With regards to conventional ‘career success’, an earlier autism diagnosis would have been a mixed blessing.
I could have started getting to know myself much sooner, but some opportunities would have been denied me due to stigma.
7/
A sense of urgency drove me to my autism assessment.
I was growing older by then, approaching 60.
I wanted to live the rest of my life authentically, autistically.
But I didn’t anticipate how much cognitive and emotional work this would involve, or how long it would take.
8/
I am still only partway there. The change has been gradual and faltering.
These are steep and shifting sands.
I get a footing then slip back.
But my progress is obvious when I look behind me and see where I started.
It’s not the external changes which are most significant.
9/
The most important transformation is in how I have come to see myself.
The emergence of self care and self compassion that were so long overdue.
My unwillingness to put up with any more sh** from bullies and narcissists.
And boundaries I am gradually starting to put in place.
10/
Moving on means letting go of things that have been harmful to me.
It took me some time to recognise exactly what these were.
Maladaptive coping mechanisms can be surprisingly successful, that’s why they’re so seductive, even though they tend to prove destructive in the end.
11/
‘Moving on’ also means knowing where I’m heading.
In my case this is a general direction rather than specific goals.
It’s about who I want to be and how I want to invest the precious time that remains.
My consciousness of life’s finitude spurs me on to unknown possibilities.
12/
This great tumultuous adventure I have been on for the last six decades might stop abruptly.
I don’t want my life to end with regret.
The final chapter is the most important one.
It’s the one I get to plan and write myself.
I am mainly looking forward now, not back.
13/
I’ve worked through a lot of difficult stuff buried deep in my past.
I’ve battled with internalised ableism and got the better of it.
I’ve seen how the world treats autistic people and I object.
I’m an autistic activist.
#SelfActualization
#ActuallyAutistic
#AutisticPride
14/end
@threadreaderapp unroll please!

• • •

Missing some Tweet in this thread? You can try to force a refresh
 

Keep Current with Rose Matthews

Rose Matthews Profile picture

Stay in touch and get notified when new unrolls are available from this author!

Read all threads

This Thread may be Removed Anytime!

PDF

Twitter may remove this content at anytime! Save it as PDF for later use!

Try unrolling a thread yourself!

how to unroll video
  1. Follow @ThreadReaderApp to mention us!

  2. From a Twitter thread mention us with a keyword "unroll"
@threadreaderapp unroll

Practice here first or read more on our help page!

More from @NortherlyRose

Apr 3
#Thread
#Autism awareness and acceptance really matter because stigma, prejudice, and lack of trauma informed, ‘experience sensitive’ approaches perpetuate structural inequalities and injustices.
In my locality #SocialCare needs of autistic adults come under the #MH service.
1/
I saw an unqualified Assistant Psychologist in the #CMHT after my #autism diagnosis.
I wanted help with the existential crisis of late autism diagnosis but ended up being gaslighted.
I realised what was going on and discharged myself after explained what iatrogenic harm meant.
2/
A few months ago a combination of factors (none of them to do with mental health) meant that I needed social care support.
Because I am #Autistic I was told that my assessment would be carried out by the MH team.
I was so traumatised by my last contact with them I declined.
3/
Read 13 tweets
Feb 18
#Thread
Adjusting to a very late in life #autism discovery.
How my life has changed 5+ years on.
Like many #Autistic people I had experienced repeated episodes of #burnout and #trauma.
By the time I reached my late 50s I was exhausted.
I had no energy to get going again.
1/
This quiet breakdown could easily have gone unnoticed or been explained by a number of other things.
I’d always been quirky and different, a highly sensitive, deeply empathic person.
My distress could have been attributed to a personality issue, or to anxiety
and depression.
2/
Through good fortune and serendipity I found my way to a service that helped me to start making sense of my life.
The process of acceptance, adjustment, and self-advocacy has continued since then.
It’s not enough for me to adapt, other people need to make accommodations too.
3/
Read 16 tweets
Jan 2
I feel blessed to have reached the age of 64 with much of my life still intact.
When everything began to unravel in my 50s it wasn’t clear why.
My career (which had been reasonably successful, if somewhat disjointed) got derailed.
My personal life started falling apart too.
1/
Without understanding why this was happening, it would have been impossible to remedy the situation.
I’d have carried on pulling at the loose threads until there was nothing left at all.
Discovering that I was #Autistic gave me the answers I needed to start to repair my life.
2/
What needed fixing wasn’t me, it was my living and working environments, and communication between me and other people.
Although I’d realised that interpretation and translation prevented misunderstandings, I hadn’t recognised my language and culture were distinctly Autistic.
3/
Read 7 tweets
Nov 16, 2022
I’m celebrating the 4th #autieversary #autiversary of getting my v late in life #autism diagnosis today.
Here’s a thread of some of the #threads I’ve written along the way, starting with my 1st anniversary when I wrote about my beloved dogs.
#ActuallyAutistic
#AutisticTwitter
1/
Nearly two years on from my #diagnosis I wrote about how much I had discovered about #autism and myself.
2/
On the second anniversary of my #autism diagnosis I wrote a thread about #bullying (not realising that it was my #autieversary at the time). It was very appropriate though, as bullying and abuse have had a huge impact on me, especially in adulthood.
#ActuallyAutistic
3/
Read 8 tweets
Oct 29, 2022
#Thread
Rebuilding a career after a late in life autism diagnosis.
Personal reflections of a very late discovered #ActuallyAutistic person, 4 years on.
1/
Burnout was a factor in me finally finding out I was autistic.
I’d become overwhelmed and exhausted.
I’d drifted to a halt, and then couldn’t get going again.
I was overloaded by being bullied at work, being in perimenopause, unresolved trauma and my partner’s serious illness.
2/
A demanding new job immediately after my diagnosis didn’t kickstart recovery from burnout like it would have done previously.
What the psychologist had told me about taking ‘baby steps’ was true, even though I didn’t want it to be.
I finally realised I couldn’t afford not to.
3/
Read 23 tweets
Oct 14, 2022
#Thread
Why it’s sometimes difficult to know how unwell I am.
A personal autistic perspective.
I’ve been feeling rotten since Sunday, with some kind of respiratory illness.
After 3 years of respite from colds and flu it came as a bit of a shock.
I haven’t had Covid yet either.
1/
I wasn’t too worried to begin with, as my partner was ill before me.
After 2 or 3 days he started to feel better, and I assumed I’d be the same.
Unfortunately I’ve been getting steadily worse.
Less energy.
More coughing.
Less desire to eat.
More sleeplessness.
Strange pains.
2/
I’m almost always in some kind of pain so that in itself isn’t a reliable indicator of being unwell.
Nor is severe fatigue, which occurs so regularly it seems normal.
I rely on objective symptoms like fevers, rashes and swellings.
Tests are a bonus, if they are available.
3/
Read 21 tweets

Did Thread Reader help you today?

Support us! We are indie developers!


This site is made by just two indie developers on a laptop doing marketing, support and development! Read more about the story.

Become a Premium Member ($3/month or $30/year) and get exclusive features!

Become Premium

Don't want to be a Premium member but still want to support us?

Make a small donation by buying us coffee ($5) or help with server cost ($10)

Donate via Paypal

Or Donate anonymously using crypto!

Ethereum

0xfe58350B80634f60Fa6Dc149a72b4DFbc17D341E copy

Bitcoin

3ATGMxNzCUFzxpMCHL5sWSt4DVtS8UqXpi copy

Thank you for your support!

Follow Us!

:(