Discover and read the best of Twitter Threads about #diagnosis

Most recents (5)

Speaking of #marijuana.

Given the possibility of criminal prosecution or other disciplinary outcomes, I'll put this story as a fable.
There was a young woman, a young mother, with a husband serving in the #armedforces. The young woman had occasional #symptoms including positional agony, dizziness, etc.
Her #country, the #UnitedStates, cared so little about those that served in the military that it provided 3rd class #medicalcare through many of its bases and camps.
Read 28 tweets
February 29th is the #RareDiseaseDay! A special day for 13 million Brazilians with rare diseases like #idiopathic #pulmonaryfibrosis #ipf #cpfe, #systemicsclerosis #SSc #SScILD #ymphangioleiomyomatosis #lam
  and so many others!
A day to remember that the disease can be #rare, but NOT the #diagnosis ! After all, the #rare just wants #support, #care & be #welcome like all of us!
But they need all of us to be listened and respected in other to continue moving forward with #hope & making the world a better place for all ! " :) #rarediseaseday2020
Read 3 tweets
February 29 (the rarest day) is #RareDiseaseDay and this matters a great deal. It matters to me and my family, but also to millions of others who have stories similar to ours. If you follow me on @Twitter, you probably know some of my story.
I don’t want to bore you by telling it again, but I do want to talk a bit about what I’ve learned since my #diagnosis and since becoming a #RareDisease #advocate.
The first thing I learned was that even though it was a relief to have a diagnosis...(i.e. some sort of validation that there was a reason I didn’t feel well my whole life), it was really really hard to come to terms with having this new label.
Read 27 tweets
Okay, trying again:

A thread on accomodations for invisible disability - from the perspective of someone who's never accessed them before (ie. speculating and asking questions)
Look on your whole life (barring maybe the past four years), and see yourself and all your struggles as part of the norm. You've always seen yourself as alien or foreign, but imagined your experiences must have been similar to those of everyone else. /1
Then, give a name to whichever condition had disabled you up to this point. It's kind of hard to retroactively look back on your life in this way and say - definitively - that your past problems did or did not stem from said condition. /2
Read 9 tweets
1.I believe this could've been my mother's case.. raped in the military, told "it didn't happen".. shock therapy, other treatments, tons upon tons of psych meds.. Never contacted immediate family.. from 10-13yrs old my mother was missing.. found her in GA outside MI Base when she
2.(broke programming) and started remembering her children and a roommate she was staying with heard her talking about children a tracked down my 16yr old brother, who left in the middle of the night to get her.. fyi..she was still seeing MI Dr's at the base..
@POTUS @GenFlynn
They never contacted her immediate family and we never got answers as to why she wound up in GA, not even knowing who she was really.. when she was last at a VA hospital fresh out of boot camp (when the rape occurred) in SC
@GenFlynn @POTUS
Read 6 tweets

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