Post

How to get URL link on X (Twitter) App

On the Twitter thread, click on or icon on the bottom
Click again on or Share Via icon
Click on Copy Link to Tweet
Paste it above and click "Unroll Thread"!
More info at Twitter Help

Long Covid Kids / longcovidkids@bsky.social

@LongCovidKids

Jul 6, 2022 • 8 tweets • 6 min read • Read on X

Scrolly

Minimising the experience of children living with #LongCovid has an ongoing impact on those suffering.

"This is Daniel. He is 16 - LC for 16 months.
Due to ongoing stomach pains, he is scared of eating & now has an eating disorder too, skin & bone"

#LongCovidKids #ChildHealth

@AlderHey

"This is Poppi. She is 7 - #PIMS March 21 after #Covid19, she was so poorly in @AlderHey for 2 weeks. Poorly ever since.
Reinfected in Feb 2022 at school - now worse than ever. Drs haven't a clue what's wrong with her I, want my little girl back"
#LongCovidKids

@lou_sav

Meet Emily Saville
"battling Long Covid since September 2021. Fit and well with no underlying health issues before. Now uses a wheelchair when going out of the house due to chronic fatigue and is relearning to walk again"
#LongCovidKids @lou_sav

This is Vinnie age 4 .
"27 months since his initial covid infection. Since then. Numerous trips to A&E. 3 hospital admissions & 2 emergency ambulance trips. Many medical appointments. Over half of his life spent suffering. Before - a perfectly healthy little boy.
#LongCovidKids

Meet Connie age 11 Long Covid 7mths.

“Top left image happy go lucky child Sep 21. Suffers with joint pain, mobility, fatigue, brain fog, palpitations & now anxiety 🧡”

#LongCovidKids

This is Jacob.
“ he came into contact with Covid March 2021 age 10. Turning 12 this week. His life is physio, resting, part time education & working on recovery. Covid isn’t “mild” for everyone”

#LongCovidKids #itshappening

@BorisJohnson

Meet Victoria (12) “she was an avid baker, doing her Bronze Medallion Award in Lifesaving, dog walker, cello player, Guide. A very busy life.

Now, she's a shadow of her former self and can't manage much at all”

#LongCovidKids @BorisJohnson

Meet Ollie, he is 9.
“Ollie has had Long Covid/ME Since Dec 2021. He suffers pain and exhaustion every day and still manages to smile 😍. He’s my little hero xx”
#LongCovidKids

• • •

Missing some Tweet in this thread? You can try to force a refresh

This Thread may be Removed Anytime!

Twitter may remove this content at anytime! Save it as PDF for later use!

More from @LongCovidKids

Long Covid Kids / longcovidkids@bsky.social

@LongCovidKids

Oct 23

LCK Closing Subs @covidinquiryuk
Sarah Hannett KC

"failures constitute an ongoing breach of the government's duty to place the best interest of children at the heart of their decision making and to respect the human rights of those children & their families"

#ChildrensRights

4 Points.
1st - The ongoing impact on our clients and their families.
"Our clients' children did not "bounce back" after their COVID infection or reinfection, rather COVID infection led to #PIMS or developed into #LongCovid leading to serious ill heath and disability"
#Children

2nd

"at no point (then or since) has any governmental body warned parents, children or schools about the existence of & risks of #LongCovid - the silence constitutes a public health failure" Cases rising rapidly were accepted as strategic risk.

#ChildrensRights

Read 12 tweets

Long Covid Kids / longcovidkids@bsky.social

@LongCovidKids

Oct 9

🧵Understanding How the @covidinquiryuk Handles Questions

We know that many of you are feeling frustrated that some of the key questions we hoped would be asked in the Covid Inquiry haven’t yet been put to witnesses. We completely understand and we share that frustration.
We

wanted to explain a bit about how the Inquiry process works, so it’s clearer why this is happening and what we’re doing about it.
The Inquiry is a statutory process, which means it operates under strict legal rules. The questioning of witnesses is led by Counsel to the Inquiry

(the Inquiry’s own legal team), under the direction of the Chair, Baroness Hallett. This means that neither core participants nor members of the public can directly ask questions during the hearings unless granted permission.

Read 10 tweets

Long Covid Kids / longcovidkids@bsky.social

@LongCovidKids

Mar 17

🚨 New: Long Covid services are failing patients.

📊 A joint report from @long_covid & @LongCovidKids reveals:
🛑 Clinics are closing.
🛑 Care is inconsistent & often falling short of NHS commissioning guidelines.

Action NOW!

#LongCovid #ClosingClinics bit.ly/3FBNMva

🔹 01 - Over half of adults & children with #LongCovid told us they consider themselves #disabled.
Yet services are closing, & care is inconsistent. Long Covid must be recognised as a serious, disabling condition.
🔗
#ClosingClinics bit.ly/3FBNMva

🔹 02 - 61% of children & 28% of adults told us they didn’t know Long Covid services existed.
How can people access care if they don’t know it’s available?
📢 We need awareness & proper investment.
Read the report:
🔗

#LongCovid #ClosingClinics bit.ly/3FBNMva

Read 12 tweets

Long Covid Kids / longcovidkids@bsky.social

@LongCovidKids

Jan 22

‘Compared with the pre-COVID condition, the COVID group had greater severity of inattention, somatic complaints, thought problems, internalizing problems, poor school functions, and interaction problems with their parents in the post-COVID condition’

#LongCovid #LongCovidKids

84 children aged 6–16 received assessments within 6 mths after being tested + for 🦠

Parents reported observations 3 months before infection & the most recent 2 wks (post-COVID condition) on a wide range of psychopathologies & social functional impairments

#LongCovidKids

Preventing infection in children should be high priority.

Please share this study with those who have the power to protect all children.

@GwynneMP
@wesstreeting
@bphillipsonMP
@educationgovuk

#LongCovidKids #LongCovid #CleanAir #Education

sciencedirect.com/science/articl…

Read 4 tweets

Long Covid Kids / longcovidkids@bsky.social

@LongCovidKids

Nov 27, 2024

Closing statement from Sarah Hannett KC on Children and Young People 27/11/24.

"Long Covid is a new childhood disease whose prevalence is equivalent to childhood diabetes"

#LongCovid #LongCovidKids #CovidInquiry

One teenager told Every Story Matters that "it's a big identity crisis, my Mum and I were fit active people, I was meant to be beginning pro ballet as a career"
"at a young age difficult a you are finding out who you are, it's an identity I don't want"

#LongCovidKids #LongCovid

"In the UK throughout 2020 there was no information published by @GOVUK stating that children & young people could have any, let alone debilitating symptoms from COVID/LongCovid"
"When families sought assistance for children suffering they were routinely dismissed"
@SammieFMc

Read 9 tweets

Long Covid Kids / longcovidkids@bsky.social

@LongCovidKids

Sep 6, 2024

🧵 Module 8 Prelim Hearing @covidinquiryuk @LongCovidKids @LCKScotland
CYP with #LongCovid suffered the double burden of the direct effect of their illness and disability as well as the indirect effects of the pandemic & it's associated measures felt by all CYP
Sarah Hannett KC

Some CYP have lost their lives to COVID-19, many continue to suffer from the life changing, disabling symptoms of #LongCovid

Patients & their families suffer the additional burden & stigma of being disbelieved and disparaged or having symptoms minimised or dismissed as anxiety

We agree with the observations made by the CRO that the Pandemic, & we would add #LongCovid, exacerbated and continues to worsen existing inequalities amongst CYP in terms of, for example social economic status, ethnicity & disability
#LongCovidKids