In case you don't know my story, I developed #MECFS #POTS etc. from a virus 8 years ago.
When the pandemic started, I reached out to @itsbodypolitic in May 2020 at the first indication of #LongCovid to help. I would never imagine the sheer number of people it would affect.
When the pandemic started, I reached out to @itsbodypolitic in May 2020 at the first indication of #LongCovid to help. I would never imagine the sheer number of people it would affect.
https://twitter.com/AlisonSbrana/status/1571970074407497729
Now today, I have close friends from @itsbodypolitic at the #MillionsMissing protest in Washington DC who developed #MECFS from Long COVID. I am devastated that millions more people now suffer from this terrible disease which we have no treatment for.
https://twitter.com/MEActNet/status/1571906263432286208?s=20&t=gmvYzqocjEbYBHTbJvm7lg
I am angry because this suffering need to be addressed appropriately. The government failed to act before the pandemic, for the 2.5 million of us with #MECFS and now they have failed to act for the many, many more with #LongCovid who have joined us.
https://twitter.com/AlisonSbrana/status/1571970147510013952?s=20&t=gmvYzqocjEbYBHTbJvm7lg
This is why we ask for a national emergency for #MECFS and #LongCovid –– the government response to Long COVID is not enough. All government efforts on ME/CFS and associated diseases are not enough.
For any #journalists wanting to cover this, tune in for this roundtable tonight. And remember, at @itsbodypolitic we have an easy Google Form that posts press opps direct to our Slack group with thousands of members: wearebodypolitic.com/press
https://twitter.com/MEActNet/status/1571957808240951298?s=20&t=gmvYzqocjEbYBHTbJvm7lg
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