"This is something the ivory tower medical profession needs to realize — #LongCovid is going to push us outside our comfort zone w/ illnesses we can’t define. Because we don’t like when we can’t understand something but we have to get over that" @WesElyMD statnews.com/2022/10/10/a-d…
"With long #Lyme, #MECFS.. I was taught in med school they weren’t real..I used to think those weren’t real. I was just with some med students last week, & I talked to them about long Lyme. And they said we were taught that that’s not real — and these are current med students."
The first thing I say to my fellow #MedTwitter is we’re busy.. I get that.. for #LongCovid, there’s no treatment yet, but you can say to them, “I’ll stick with you as we learn more in the months and years ahead and we’ll figure this out together.” - @WesElyMD
"You know, I'm an old doctor.. if you had told me 2 years ago that I was going to be on social media & Twitter, I would have said, “You’re crazy” But two things happened.. a lot of doctors.. said if you get on Twitter, we can find patients faster. I said fine."
Six months ago, people in the office said you need to get on TikTok & I said, “No, I’m drawing the line.” But there’s this crazy set of misinformation being spread on TikTok.. I thought, “I’m just going to try five videos & see what happens.”
"The brain’s capacity to heal is so much greater than what people give it credit for. We have trillions and trillions of neurons and connections, and these things can regrow. So, if a patient gets this brain fog and they think, 'Oh, my gosh, I’m never going to get back again'"
"I always tell them, do not lose hope.. whether it’s mitochondrial disease or glial cells that have died, or vascular clotting that develops into #LongCovid, your body has this capacity to recover, and you must remain hopeful that you can get through this."
Tremendous humility and compassion from @WesElyMd in this interview -- I 100% agree for majority of #LongCovid patients this all were looking for right now, doctors who believe us, listen to us, and are willing to ride this out and work on it together.
Not so much to ask.
Not so much to ask.
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