Willow Profile picture
Nov 4 12 tweets 5 min read
I spent yesterday & last night in the ER. I've been sick for 2 weeks with - RAT & PCR.
Though my Covid test was negative, they said I may have one of the new strains not showing up on tests. 6 diff docs who treated me last night said they'd seen lots of this happening recently.
Haven't left my home in weeks.
My partner was most likely asymptomatic & gave it to me after attending an outdoor event.
He masked & quarantined in another part of the house. It wasn't enough.
After virtual consult, was advised to hang up & dial 911 to be rushed to ER. My partner took me but was unable to stay with me.
I struggled navigating my manual WC due to L sided weakness. Even as a stroke patient w worsened ongoing symptoms, I had to wait 3 hrs for triage.
I've had "usual" covid symptoms over last 2 wks. Most concerning was bp spikes & spo2 drops down to 84% at rest.
Severe abdominal pain & headaches had me vomiting from the pain. Havent slept > 2 hrs at a time in weeks. I haven't eaten in 6 days.
I've had a recrudescence of stroke symptoms - inflammation has set every system aflame. Waiting on my CTA results to see if I've had another stroke.
Was given a cocktail of meds just in case, 3 iv treatments & morphine for the body pain. Nothing took the headache away.
Scans found new scaring & bilateral bibasilar atelectasis, worse in r lung.
Colonic diverticulosis in my intestines & labs show signs of new kidney disease.
Additional degeneration of thoracolumbar spine as well.
Last scans were in September.
I'd tried to push through thinking this was all just a severe flare of ongoing #LongCovid & #stroke symptoms.
They kept asking "why didn't you come in sooner?"

This is my normal.
I'm trying to rest up & heal currently but am still going to have to be monitored for progress & be wary of worsening. Wearing 24 hr bp/spo2 monitor & doing stroke assessments repeatedly thru the day again.
I hate this all so much.
I'll be on a mostly liquid diet for a while. I can barely drink water or veggie broth without being sick.
I tried eating a grape & it was even too much.
I have kept down 3 fork fulls of avocado today :) progress?
Covid is not over.
Continue taking precautions to protect yourself & others.
Don't let your guards down because you perceive an outdoor event as "safe".
Don't assume - RAT means ur "safe" especially if u have symptoms.

#CovidIsNotOver #WearAMask #LongCovid #NotRecovered
I also should add -

I tested multiple times on RAT at home over the last 8 days & did a nose & throat swab for every test.

I also tested negative for flu & RSV.

I've spoken to known exposures my partner had recently pcr + last wk & whose families are now +.
#MedTwitter can you help me understand what this means? I see these notations from my ct scan yesterday.
I don't meet w my neuro until the 16th to discuss these findings :(
#StrokeSurvivor #brainAneurysms
#braininjury #mybrainisbroken Text:  "Redemonstrated...

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More from @__Granuaile__

Jul 6
I'm begging you, please, listen to those of us who have #LongCovid from the 1st wave.
We're sharing experiences & medical traumas to try to help you understand how damaging long term affects of Covid are to help protect you from suffering the same fate.
#TreatLongCovid
1/7
Sharing isn't easy.
Cognitive decline coupled w emotional impact of so much hate & denial we face takes a toll.
We keep shouting into the void hoping our voices will help others understand how absolutely necessary it is to protect yourself & others.
#COVIDisAirborne
2/7
Many of us have multisystem degeneration & damage & have been disabled by Covid.
We've had to fight for our lives everyday while being dismissed by friends, family, & drs.
Our advocacy is based in our survival & much of hc now is based in what we've learned along the way.
3/7
Read 8 tweets
May 14
Day 823 of my #longcovid battle
a thread.
This will mostly be rambling, screaming out into the void as I've felt even more disconnected as my health continues to deteriorate.
Took cpl hrs to get this out & is all over the place but that's ok too.
1/21
"mild" case of covid February 2020 led to LC rearing it's ugly head by June 2020. In 1styear, I went from being healthy & active to suffering 100+ symptoms.
Each dr visit & scan found further degeneration & damage. I was met w dismissal & gaslighting from med community.
2/21
I found great solace & help in the LC communities on social media. It gave me strength to keep advocating for healthcare & finding ways to self manage symptoms until I could find a dr to listen.
I firmly believe I wouldn't have survived w out y'all.
3/21
Read 22 tweets

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