📍as a #LongCovid patient you admitted on embarking to Turkey for pheresis that
📍this Tx was an UN-established long shot
📍but your life w this syndrome had devolved
📍as a scientist you now found yourself willing
📍while others conduct trials
2/ I see your choices in seeking therapy for #LongCOVID as brave & honest w cautious expectations cognitively & physically.
Most importantly, you’re demonstrating hope & a desire never to give up.
Knowing you, @pamelarbishop, and calling you friend is a gift beyond measure.
3/ For anyone who chides a highly intelligent person for pursuing alternative approaches to solving health problems #medicine scoffs at, seek empathy & read these truth-telling books 📚
4/fin
As an academic medical insider, I was taught these diseases are bogus & of the mind.
✔️I silently dissed & carry that shame. No more
✔️Listen & Silent = Same letters
✔️Change my thinking? Deming said it well
✔️We @CIBScenter are leveraging NIH💰to do science & #discover
• • •
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QUESTION:
Is it OK for doctors to make unilateral decisions to limit life-sustaining therapy (eg, remove a ventilators) without patient/family discussion?
2/ Variable Approach to Limiting Life Sustaining Treatment for ICU Patients
N=12,850 patients in ETHICUS-2
% “NO DISCUSSION” at EOL was 2% in North America vs 37% in Latin America
1st meet @pamelarbishop, a scientist in forced early retirement due to LC:
“I oscillate between fierce determination to get better & abject horror at the daily destruction of my body."
read on…
2/ A case-control study of 9k unhospitalized COVID pts treated w Paxlovid btwn March & June 2022 versus 47k patients w no antiviral or antibody treatment.
📌 Not so fast
📌 Study of N=1000 backs-up our MIND-USA study - full 🧵👇
📌 Haldol doesn’t treat #delirium
📌 Calms pts & can ⬇️ danger
📌 Delirium care is about non-pharm approaches - the Dr. DRE…