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Dr Naomi Harvey (PhD not MD) #WearAMask Profile picture
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Dec 12 • 6 tweets • 4 min read
Them: I won’t wear a mask, I’m not living in fear!

Me: do you wear a seatbelt in a car? Are you living in fear?

Them: that’s different

Me: do you avoid eating undercooked chicken? Is that living in fear?

Them …

Me: How about washing your hands after you poop?
Them: they’re both just basic hygiene. I don’t want to give myself food poising or E.coli.

Me: … 👀

Them: …

Me: you don’t see it do you…

Them: masks are different, they’re muzzles only sheeple wear

Me: enjoy your winter of viral infections 👋🏻
N95/KN95s reduce the odds of infection with #COVID19 by 83% compared to wearing no masks.

Cloth masks & surgical masks were of course less effective but better than nothing.

#WearARespiratorMask

cdc.gov/mmwr/volumes/7…
For those who don’t know, up to 50% of people with Long Covid now have ME/CFS.

It’s an extremely disabling disease with *no treatments*.

Many can’t work or even leave their houses anymore, even those who can suffer daily.

You do not want this.
#MyalgicEncephalomyelitis Infographic describing ME/CFS briefly as affecting adults an
2%–14% of #COVID19 survivors develop POTS (postural orthostatic tachycardia syndrome).

This is also an extremely disabling condition that makes it hard to even sit up, let alone stand.

Again, 25% of sufferers are so disabled they can’t work.

You do not want this #WearAMask Infographic from dysautonomia International saying 25% of PO
If that’s not enough, there’s growing evidence that #COVID19 causes significant damage to your immune system (links in attached thread) and that *every time* you get it, your odds of organ damage, death & long covid all increase significantly.
Each time.

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More from @Naomi_D_Harvey

Dr Naomi Harvey (PhD not MD) #WearAMask Profile picture
Dec 13
Thread 🧵 on PEM in #MEcfs:

Yesterday, I managed a 6min walk outside.

The path is slightly sloped & a few months ago I couldn’t go even a few metres up it without feeling like I was climbing a mountain with extreme shortness of breath, dizziness, palpitations & tachycardia.
But yesterday, my body did it with ease, I barely felt the slope, I felt good!!

I was so happy, as it felt like my cardiovascular system must be healing ❤️‍🩹

But two hours after, I was weak, nauseated & utterly exhausted. I developed a headache & my arm muscles hurt.
Today, 24 hours later, my arms muscles still hurt (despite the fact I didn’t even use them) and I’m far weaker than I should be.

This is post exertion symptom exacerbation (PESE) aka post exertion malaise (PEM).

It’s the cardinal feature of #MEcfs

journals.plos.org/plosone/articl…
Read 21 tweets
Dr Naomi Harvey (PhD not MD) #WearAMask Profile picture
Nov 14
The way healthy people treat their bodies is very punishing. They push & push them, expecting the body to always take it.

Those of us with post-viral illnesses & chronic illness can’t get away with this.

Even if you’re ‘recovered’ enough to feel ok, please remember this.
I didn’t. I’d been mild for long enough that I ignored my bodies warning signs.

Increased fatigue, headaches & brain fog? Everyone around me seemed to have that, it’s got to be normal I thought, so I pushed through. Until my body broke & couldn’t be pushed anymore.
But signs like being unable to walk my dog so far as I could, taking the easy routes, shorter walks, should have told me it was my ME.

Weird little muscle cramps when climbing the stairs should have warned me.

Even knowing my ME wasn’t gone, I still fell into the trap.
Read 6 tweets
Dr Naomi Harvey (PhD not MD) #WearAMask Profile picture
Oct 8
I’ve wondered if Sildenafil (viagra) would be useful for increasing blood flow to the brain in pwME. There are a few studies trying it for increasing cerebral blood flow in vascular dementia & other disorders with promising results.
Seems I’m not the only one to see it’s potential as there was a phase 4 trial that concluded in 2010 for its use in ‘CFS’ to increase cerebral blood flow but I can’t find published results clinicaltrials.gov/ct2/show/NCT00…
Looks like it may have helped somewhat for symptoms on the 42 item fatigue impact score: placebo outcome was -1.5 lower (scale range from 0-142), Sildenafil outcome was -33 (p<.05)
Read 7 tweets
Dr Naomi Harvey (PhD not MD) #WearAMask Profile picture
Oct 7
Has #pwME or #LongCovid managed to get oxygen therapy at home via the NHS?

#NEISvoid #LongHauler #MyalgicEncephalomyelitis
Why isn’t anyone studying whether home based oxygen therapy can help #pwME or #pwLC?

I see loads of studies of HBOT showing it helps & other studies saying we’re hypoxic. But HBOT studies annoy me because HBOT therapy *is not accessible* for most people! We need home therapy!
“The now retired ME/CFS specialist Dr. Paul Cheney also used to frequently prescribe home oxygen therapy to ME/CFS patients, even as little as 1 hour of treatment per day seemed to be effective” (from drcourtneycraig.com/blog/2019/2/9/… )
Read 5 tweets
Dr Naomi Harvey (PhD not MD) #WearAMask Profile picture
Oct 7
So, I was thinking last night: is there anywhere that #pwME can leave their bodies to science for ME research?

Those who die with ME often don’t even get a post mortem, & if they do, the coroner doesn’t know what to look for.

Is anywhere prepared to accept & study our bodies?
Sorry for being morbid, I’m not expecting any of us to die soon! I just think it’s something that should be arranged just in case. And I’ve never seen a case report or other published materials from autopsy data.
I’ve found a press release from 2017 linking to a brain donation project but I think it’s only for people in the USA meaction.net/2017/03/24/don…
Read 4 tweets
Dr Naomi Harvey (PhD not MD) #WearAMask Profile picture
Jul 24
On, quick thread on this.

I saw it this morning and immediately dismissed it a ‘woo woo’. Nothing is likely to cure us. But some things can help. And after looking at the research on this, it actually might be worth a try for those who can afford it 🧵
What the device does is deliver microcurrent therapy (MCT) also called microcurrent electrical nerve stimulation (MENS).

It’s been approved by the FDA for treating muscle pain, beyond that everything is early stage research.
MCT delivers small electric currents in micro amps, across the skin without activation of muscle contractions or noticeable sensations, and its mechanism is different from that of conventional transcutaneous electrical nerve stimulation (TENS) with works with bigger mA pulses.
Read 20 tweets

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