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Jan 20 • 4 tweets • 3 min read
Excellent piece in today’s @BBCRadio4 Woman’s Hour featuring @BinitaKane who discusses #LongCovid

Starts at 19:30

bbc.co.uk/sounds/play/m0…
Hearing Dr Melissa Heightman’s (clinical lead for post-covid services at UCHL & national speciality advisor with the #LongCovid programme in @NHSEngland) responses solidified my view that we’re not going to get the help we need unless things change

#NotRecovered #treatlongcovid
“The key goal of the post-covid services is that we bring the right specialists around the person”

“That has been one of the success stories of the pathway”

“The #longcovid clinics are definitely not doing nothing”

- Dr Heightman

Agree?
I would urge you to send your experiences to Dr Heightman at: uclh.respiratorymedicine@nhs.net

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More from @GeoEduOne

GeoCK Profile picture
Jan 20
#LongCovid is a mass disabling event happening in real time. Where are all the investigative journalists producing compelling pieces for the screen? 🧵
It’s a story of millions of people losing their once vibrant lives to a vile illness with no effective treatments or cure.

A story intertwined with an older decades long story of post-infection chronic illnesses that have been ignored with millions left abandoned and mistreated.
It’s a story of a disinterested and misinformed public.

A story of medical gaslighting and neglect.

A story of political disinterest and ignorance.

A story of denial, abuse and minimisation. Where sick people intersect with ideologues and conspiracy theorists
Read 7 tweets
GeoCK Profile picture
Jan 18
The cell danger response, healing cycle & chronic disease

An interesting talk by Dr Robert Naviaux. See 🧵 for more

#Autism #MECFS #LongCovid #mitochondria

Suramin, according to Naviaux is the first in a new class of drugs that could be used to test the cell danger response. A small pilot study in #Autism was successful. Naviaux believes it could help people with #MECFS too…

naviauxlab.ucsd.edu/science-item/s…
Suramin Trial – Bob Naviaux – It’s been reported that this trial has been funded and will begin this year. Ron Davis has expressed hope that it will provide some answers. - Health Rising Feb 2022

healthrising.org/blog/2022/02/0…
Read 4 tweets
GeoCK Profile picture
Jan 16
When a poorly run study erroneously concludes that #LongCovid mostly resolves in a year the media jumps on it within hours. Yet when the most comprehensive and accurate review of long covid to date paints a much more sobering picture the media is silent
Here is the review that no major global news outlets have picked up on yet:

nature.com/articles/s4157…
Here are the conclusions:
Read 13 tweets
GeoCK Profile picture
Dec 30, 2022
One year ago today I woke up feeling absolutely dreadful. I’d gone for a 5k run the day before and little did I know that it would precipitate the debilitating #LongCovid that I’ve endured for the last year. I haven’t had ONE good day since then. 1/2
I’ve been either stuck in bed or at home with crushing symptoms. I’ve been diagnosed with #POTS meaning I can barely stand up. 2022 has been an awful year. But the #LongCovid and #MECFS Twitter community has been amazing. We all deserve a better 2023! 2/2
@RishiSunak @SteveBarclay @NHSuk @UKHSA @DHSCgovuk @BBCNews @itvnews @Channel4News

#LongCovid is impacting the lives of >2 million people in the UK. Many have had their lives completely ruined and more are being affected every day. We need help

#NotRecovered
Read 8 tweets
GeoCK Profile picture
Dec 21, 2022
In 2010 I fractured my collarbone badly in a cycling accident. It was broken into 4 pieces after I lost my front wheel to black ice on a ride home from work one late winter’s evening 1/n
I waited a week for surgery to put it back together, then a further 6 weeks for it to heal. I still vividly remember the pain of the bone splitting 2/n
The exhaustion after picking myself up, walking home and carrying my bike up a flight of stairs (foolishly) 3/n
Read 9 tweets
GeoCK Profile picture
Nov 14, 2022
🚨 This is a must watch for people with #LongCovid and #PostVac

Dr. Akiko Iwasaki: Immunology of Long COVID: Nov 10, 2022

Read 6 tweets

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