GeoCK Profile picture
Feb 4 4 tweets 2 min read
Preprint: Correlates of symptomatic remission among individuals with post-COVID-19 condition 🧵

“Conclusions and Relevance
A minority of individuals reported remission of PCC symptoms”

#longcovid #treatlongcovid

medrxiv.org/content/10.110…
Overall, 131/423 (31%) of those who completed a subsequent survey reported no longer being symptomatic. In Cox regression models, male gender, younger age, lesser impact of PCC symptoms at initial visit, and infection when the Omicron strain predominated were all…
statistically significantly associated with greater likelihood of remission; presence of ‘brain fog’ or shortness of breath were associated with lesser likelihood of remission.
Conclusions and Relevance
A minority of individuals reported remission of PCC symptoms, highlighting the importance of efforts to identify treatments for this syndrome or means of preventing it.

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More from @GeoEduOne

Feb 4
Long-term high-dose immunoglobulin successfully treats Long COVID patients with pulmonary, neurologic, and cardiologic symptoms

#longcovid 🧵

frontiersin.org/articles/10.33…
Introduction: Long COVID is the overarching name for a wide variety of disorders that may follow the diagnosis of acute SARS-COVID-19 infection and persist for weeks to many months. Nearly every organ system may be affected.
Methods: We report nine patients suffering with Long COVID for 101 to 547 days. All exhibited significant perturbations of their immune systems, but only one was known to be immunodeficient prior to the studies directed at evaluating them for possible treatment.
Read 8 tweets
Jan 20
#LongCovid is a mass disabling event happening in real time. Where are all the investigative journalists producing compelling pieces for the screen? 🧵
It’s a story of millions of people losing their once vibrant lives to a vile illness with no effective treatments or cure.

A story intertwined with an older decades long story of post-infection chronic illnesses that have been ignored with millions left abandoned and mistreated.
It’s a story of a disinterested and misinformed public.

A story of medical gaslighting and neglect.

A story of political disinterest and ignorance.

A story of denial, abuse and minimisation. Where sick people intersect with ideologues and conspiracy theorists
Read 8 tweets
Jan 20
Excellent piece in today’s @BBCRadio4 Woman’s Hour featuring @BinitaKane who discusses #LongCovid

Starts at 19:30

bbc.co.uk/sounds/play/m0…
Hearing Dr Melissa Heightman’s (clinical lead for post-covid services at UCHL & national speciality advisor with the #LongCovid programme in @NHSEngland) responses solidified my view that we’re not going to get the help we need unless things change

#NotRecovered #treatlongcovid
“The key goal of the post-covid services is that we bring the right specialists around the person”

“That has been one of the success stories of the pathway”

“The #longcovid clinics are definitely not doing nothing”

- Dr Heightman

Agree?
Read 4 tweets
Jan 18
The cell danger response, healing cycle & chronic disease

An interesting talk by Dr Robert Naviaux. See 🧵 for more

#Autism #MECFS #LongCovid #mitochondria

Suramin, according to Naviaux is the first in a new class of drugs that could be used to test the cell danger response. A small pilot study in #Autism was successful. Naviaux believes it could help people with #MECFS too…

naviauxlab.ucsd.edu/science-item/s…
Suramin Trial – Bob Naviaux – It’s been reported that this trial has been funded and will begin this year. Ron Davis has expressed hope that it will provide some answers. - Health Rising Feb 2022

healthrising.org/blog/2022/02/0…
Read 4 tweets
Jan 16
When a poorly run study erroneously concludes that #LongCovid mostly resolves in a year the media jumps on it within hours. Yet when the most comprehensive and accurate review of long covid to date paints a much more sobering picture the media is silent
Here is the review that no major global news outlets have picked up on yet:

nature.com/articles/s4157…
Here are the conclusions:
Read 13 tweets
Dec 30, 2022
One year ago today I woke up feeling absolutely dreadful. I’d gone for a 5k run the day before and little did I know that it would precipitate the debilitating #LongCovid that I’ve endured for the last year. I haven’t had ONE good day since then. 1/2
I’ve been either stuck in bed or at home with crushing symptoms. I’ve been diagnosed with #POTS meaning I can barely stand up. 2022 has been an awful year. But the #LongCovid and #MECFS Twitter community has been amazing. We all deserve a better 2023! 2/2
@RishiSunak @SteveBarclay @NHSuk @UKHSA @DHSCgovuk @BBCNews @itvnews @Channel4News

#LongCovid is impacting the lives of >2 million people in the UK. Many have had their lives completely ruined and more are being affected every day. We need help

#NotRecovered
Read 8 tweets

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