Millions are missing
And the cooper’s wife is too
So we hold our silent vigil
For a girl in a gown too blue
Lost in halls and hospitals
A silver talisman bears true
The diagnosis they doubted
With “Maybe it’s just you?”
“Maybe it’s your fault
Did you ever think it might?
It sure looks like anxiety
Caught in fight or flight
This isn’t an emergency
I’ve no time to spare tonight
For another hypochondriac
Who thinks her Google search is right”
The words echo again
We’ve heard them all before
Generations of us girls
Lost to fable and to lore
Seal wives and fae women
Changelings left by the door
You wouldn’t hear our screaming
So now you’ll hear our roar
The nails in our coffin
Wrought of iron, silver, laws
Pilliwinckes and forceps 
Their ever-sharpened claws
They threw us in asylums
When our ailments gave them cause
And said “domestic illness”
When our symptoms gave them pause
From hangmen down to hospitals
Aid, insurance, and the rest
They poke for holes and Devil’s Marks
Scan our feeds for #Blessed
They’ll find their proof in lies
Try to force us to confess
And hang their guilt and albatross
Like a noose about our breast
Heinrich brought the hammer
James of Scotland his book good
The Exorcist echoed louder
Than Brain on Fire ever could
The changelings left to freeze
Fae wives used as firewood
Fallen women fall through cracks
Our entreaties thought falsehood
So when they say we’re faking
Say it’s just our nerves or girth
Or tests we need will cost too much
It’s a burden we aren’t worth
Remember all they’ve cost us
Down the ages on this earth
The lettings and the leeches
And gaslit twilight births
The sanatoriums and camps
The institutions where we died
The scripture and the paperwork
Where in blood red ink they lied
We paid with copay and with coin
When our symptoms we’d confide
Then they’d brand us with hysteria
And all that that implied
Even in our homes 
With our husbands and our kin
They kill us to be free sometimes
Or bind us with our skin
Seal wives and fae women
And the changelings never win
Bridget Cleary’s fate still looms
As their narratives they spin
Our weapon is our memory
And the silence they can’t buy
Though they take our lives and livelihoods
We won’t stop asking why
For our foremothers and daughters
Women lost to us and time
We will name that Rumpelstiltskin
And refuse to spin his line
In mass graves and in platitudes
Beneath a blood red moon
We will no more be buried
’Neath binding, nail, or rune
So smash your witches’ bottle
Stolen memories aren’t a boon
And speak the names with power
Autonomic, autoimmune
You’ll not scratch out our stories
Not in hospitals or mass
Red cloaks or crooked crosses
Push us through the looking glass
Try to turn us on each other
As the “good ones” try to pass
Don’t be their Gillis Duncan
And sacrifice another lass
Maybe it’s your fault
My good doctor with his note
In penning your excuses
It was murder that you wrote
You left the seal wives hanging
They’d no proof without their coat
You thought that we were faking
Like they thought that witches float
Millions are missing
And the cooper’s wife is too
So no more silent vigils
Don’t be polite, be true
Seal wives and fae women
Owe no cooper’s guilt their due
I will shout for all my sisters
Not keep silent for you

• • •

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More from @ShanBarnsley

Feb 16
My partner had to go to @CityMD today, which he’d been putting off to avoid exposing me, a chronically ill survivor of not one but two strokes, to unnecessary risk and the doctor point blank refused to wear a mask, saying she didn’t have to. He asked her to, saying he lived with
a high risk person and she refused, saying she didn’t feel it was necessary. A DOCTOR. Apparently “do no harm” no longer includes not intentionally playing Russian roulette with chronically ill stroke survivors lives. WHAT THE ACTUAL FUCK???!!! How is this okay in any world???!!!
How are high risk people and the people who live with them, or even interact with them, supposed to get medical care, let alone do anything else like work, get groceries, pick up meds, et al. I feel like I’m being held hostage. Do you all really want us dead that fucking much?
Read 8 tweets
Mar 11, 2022
If you have long covid I seriously recommend learning how to do a poor man’s tilt table test. POTS, which many long haulers are already getting diagnosed with, has an on average four year diagnostic delay. But if you know what you’re looking for, it takes 15 minutes to diagnose.
Also, familiarize yourself with the symptoms of POTS, MCAS, and ME/CFS. I don’t know why there aren’t PSAs about this because it would save people years (and probably thousands of dollars) in diagnostic limbo.
Okay, I do know why and it’s because if people understood what Long Covid truly is/can do, they might not be in such a rush to rip their masks off and slap their blinders on. Lifelong disability is no joke. Neither are pulmonary embolisms, CVSTs, or any of the other fun prizes.
Read 22 tweets

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