Arianne Profile picture
Mar 19 8 tweets 2 min read
1-VERY early on we warned about 'pain contracts', the weaponized PDMP, & probable ramifications.
Some of us predicted that opioid policies would metastasize to other meds; suggested that a palliative care exemption for chronic pain patients and MDs who treated them was needed. 😔
2-We sounded the alarm about suicides in our community, real harms to people already sick and injured due to 'opioid policies'.
We were told that our accounts were anecdotes, that 'studies' would be needed for 'proof'.
We continue to suffer & watch friends/loved ones suffer/die.
3-We saw how 'DRUG' stigma was passed from one community to the sick & injured. How addiction tx options then somehow became the 'solution' for people with #chronicpain; patients already stable and functional on affordable, safe, and effective old school opioid medicines.
4-We were told to 'comment' on GOV dockets, plead our cases, create petitions, to keep fighting. Over a decade later there have been few to no improvements for the people put in the crosshairs of 'opioid' policies that were supposedly going to 'save lives'.
5-We see now that all those efforts were in vain. Our comments on GOV dockets disregarded. Our pleas dismissed and ignored. We kept fighting as our bodies and lives deteriorated, as policies have only led to even greater suffering and MORE death.
6-I have seen first hand that something a mere 'pain patient' says or proposes carries almost no weight. Yet if some 'expert' says the same thing then it's somehow all of a sudden at least considered and thus allowed at the 'adult table' of the 'opioid' conversation.
7-I'm exhausted by it all. My heart is so broken after losing so many in my life to 'opioid' policies and practices, either directly or indirectly. NO ONE in positions of power can declare that what they've been doing is working. It's done the opposite.
8-Their own stats PROVE this.
It's time for things to change, for GOV to admit they got this whole thing wrong and that current policies are doing more harm than good.
IF saving lives is the goal.
#OverdoseCrisis #RxMedicinesSaveLives

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More from @ravensspirit68

Mar 16
1-
Every pain patient should know our history and know who Siobhan Reynolds was.

#ChronicPain #RememberingSiobhanReynolds
Read 4 tweets
Mar 7
1-Husband established w/a clinic in our town-
Same one that refused to treat my pain a few yrs ago after exacerbating my neck injury carrying firewood.
MD had told me I'd need a referral to a pain clinic as my pain was related to a chronic condition. 🤨
Husband given a brochure.
2-He then saw this in the exam room.
He took photos for me of all of this as he knows how they treated me in the past and he also knows about all the hypocrisy of what they say vs what they actually do when it comes to CPPs.

'PAIN TREATMENT ISN'T BLACK AND WHITE'
3-Following are close ups of the poster.
Read 7 tweets
Mar 7
1-I now have ppl searching for me on FB after reading my article.
One person put a link on one of my posts about how to 'get hooked up with doctors who will give people the pills they want'.
I'm tired.
No, I'm beyond exhausted and I'm really over all of this.
#ChronicPain
2-I deleted his 'pill hook up' link, he also posted a link to his own article in which he regurgitated the tired THEORY of how- 'over prescribing started the opioid crisis' and how 'prescription pills are now being laced with Fentanyl'.
#TheGreatOpioidLie
3-Probably 25 more articles I need to write now expanding on things I could only touch on in my recent article. The first being. dispelling #TheGreatOpioidLie that uses the 'over prescribing' theory to justify the DEADLY, draconian restrictions they've implemented on RX meds.
Read 7 tweets
Mar 3
1/
Makes me sad-
The same arguments/facts we were making back in 2014 when Share Our Pain was one of the few E-advocacy groups here are the same things new people are just realizing.
Siobhan Reynolds-way before that.
GOV KNOWS the HARMS.
All the anti-opioid PROPagandists know.
2/EVERY #chronicpain pt needs to know our history re: our advocacy. Siobhan Reynolds was a lion, hunted down by GOV, cut down in the prime of her life.
Her voice will echo through time, forewarning the atrocities we see rapidly increasing in real time now. doctorsofcourage.org/siohban-reynol…
Read 4 tweets
Sep 21, 2022
Thread-I've asked the pain community to write letters to the @WhiteHouse ATTN: @FLOTUS or @Potus.
This is my own letter already sent re: how MY family's been impacted.
Now an #OpenLetter.
It will take all of us writing for #PainAwarenessMonth to make an impression.
#ChronicPain
Page 3
Read 6 tweets
Apr 29, 2022
1-Stop the, 'Over prescribing caused the opioid crisis.' narrative. I read article after article where 'liberal prescribing' is ascribed as the cause of the so called #opioidcrisis.
Many articles are written by people in our own community, self proclaimed pain pt ‘advocates’.
2-To this, I’d like to point out that in OC even a judge recently ruled:
"There is simply no evidence to show that the rise in prescriptions was not the result of the medically appropriate provision of pain medications to patients in need,"
#RxOpioidsSaveLives
#ChronicPain
3-Here is the link to that quote and ruling above: reuters.com/world/us/calif…
Read 15 tweets

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