Thread by @RThienprayoon

Next up: Fr218A- Agitation and feeding intolerance in children with medical complexity with @StocktonBev and Dr. Katherine Maddox!

Front row is Dr. Julie Hauer. The OG of this topic who wrote the book. If you don’t have it and you do #pedpc here is a link:
bookshop.org/p/books/caring…

Julie Hauer did a study on gabapentin in children with Med complexity and feeding intolerance- remarkable response in sx. (That’s Julie’s head in front of the slide! I fan girl every time I interact with her.) ❤️ #hapc23 #pedpc

“The #pedpc team is ideal to manage this because of our ability to manage nuanced sx and also to communicate.” - @StocktonBev #hapc23

“We have had a lot of success comparing progressive intestinal insufficiency to respiratory insufficiency.” @StocktonBev #hapc23 #pedpc

They also provide anticipatory guidance. “These sx tell us his body is slowing down. We need to think about how best to help if this trend continues.”
And also to check goals and values around comfort v prolongation of life. #hapc23 #pedpc

“It is well established that terminal feeding intolerance is a sign of end of life (for some children). But it seems as though it isn’t talked about outside of #pedpc.”
And Julie Hauer reminds us that there isn’t a good unified definition of this. #hapc23 #pedpc @StocktonBev

“I want to make a point about TPN. Whether this is end of life is beholden on what the family’s values are. It is worth noting that many families say ‘it’s their time’ and others say ‘my child is happy and when NPO, like their old selves”. Both are valid.
#hapc23 #pedpc

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