Siobhan Simper Profile picture
Apr 20 5 tweets 2 min read Twitter logo Read on Twitter
#NDIS complaints team rang me today - last year, I put in a comprehensive (24pg) assistive technology application which was denied. A planner assured me if I agreed to proceed with the review, no funds in my plan would be touched - they were just looking at the AT application.
Narrator: Her funds, were, in fact, cut. & the AT application was denied. I had to find this out through a MyGov inbox message containing a new plan with inadequate repair funding for my existing AT. Why the planner targeted repairs, I don't know. But I can't service my AT now.
I considered this less of an oddity & more of a threat that if you go ahead with an internal review, we can & will cut your funds further. I couldn't risk that.

But this year I decided I should make a complaint so NDIA know their culture of bullying won't be tolerated.
The complaints team were emphatic that it was my fault for not putting in an Internal Review to the decision. They danced around the fact that I had been promised no plan cuts, & had plan funding cut. When I suggested cutting ppl's funding during unrelated AT requests might....
..deter them from going to Internal Review, lest they lose more funding, the Complaints officer said "NDIA do not see that as a threat". They clearly stated there was nothing they could do for me.
How well is the #NDIS working now, @billshortenmp? Is the NDIA culture improving?

• • •

Missing some Tweet in this thread? You can try to force a refresh
 

Keep Current with Siobhan Simper

Siobhan Simper Profile picture

Stay in touch and get notified when new unrolls are available from this author!

Read all threads

This Thread may be Removed Anytime!

PDF

Twitter may remove this content at anytime! Save it as PDF for later use!

Try unrolling a thread yourself!

how to unroll video
  1. Follow @ThreadReaderApp to mention us!

  2. From a Twitter thread mention us with a keyword "unroll"
@threadreaderapp unroll

Practice here first or read more on our help page!

More from @siobhansimper

Apr 20
I'm done with platforming those who have harmed & smeared #MECFS pts for decades. There is actual research in LC & ME, but those who run 'fatigue clinics' in Aus have a vested interest in suppressing this research. It's a 'dog's breakfast' because you make it so. "The current state-of-...
Minimising strategy = conflate a distinct illness (ME/CFS, which isn't even mentioned in this article) with vague post viral symptoms. A consultation with the broader disability community would have this bullshit on the editing room floor. Long COVID is not a medical...
There are countless ME experts to interview instead. But I guess it's harder to discount ME patients & decades of research if you acknowledge their existence. Every LC pt testimony is undermined by this unscientific nonsense. It's like interviewing Andrew Wakefield about Autism.
Read 5 tweets
Dec 1, 2022
On #IDPWD, I'm sharing some of my favourite quotes from submissions to the Aus #LongCOVID enquiry and joint standing committee.

"Reassurance is incredibly important because, by the time they get to see us, the patients are just paralysed with hypervigilance"
...
"We've learnt to not over-investigate"
"There is no pathophysiology"
"One of those roadblocks [to getting better] is anxiety and frustration"
- Royal Melbourne Hospital Post-Covid Clinic, source parlinfo.aph.gov.au/parlInfo/downl…
"The consequence is that COVID infections have further reduced activity levels of a huge number of individuals who were already extraordinarily inactive. This provides an attractive explanation for the high prevalence of Long COVID."

"Deconditioning is likely to be a cause and..
Read 9 tweets

Did Thread Reader help you today?

Support us! We are indie developers!


This site is made by just two indie developers on a laptop doing marketing, support and development! Read more about the story.

Become a Premium Member ($3/month or $30/year) and get exclusive features!

Become Premium

Don't want to be a Premium member but still want to support us?

Make a small donation by buying us coffee ($5) or help with server cost ($10)

Donate via Paypal

Or Donate anonymously using crypto!

Ethereum

0xfe58350B80634f60Fa6Dc149a72b4DFbc17D341E copy

Bitcoin

3ATGMxNzCUFzxpMCHL5sWSt4DVtS8UqXpi copy

Thank you for your support!

Follow Us on Twitter!

:(