#NDIS complaints team rang me today - last year, I put in a comprehensive (24pg) assistive technology application which was denied. A planner assured me if I agreed to proceed with the review, no funds in my plan would be touched - they were just looking at the AT application.
Narrator: Her funds, were, in fact, cut. & the AT application was denied. I had to find this out through a MyGov inbox message containing a new plan with inadequate repair funding for my existing AT. Why the planner targeted repairs, I don't know. But I can't service my AT now.
I considered this less of an oddity & more of a threat that if you go ahead with an internal review, we can & will cut your funds further. I couldn't risk that.
But this year I decided I should make a complaint so NDIA know their culture of bullying won't be tolerated.
The complaints team were emphatic that it was my fault for not putting in an Internal Review to the decision. They danced around the fact that I had been promised no plan cuts, & had plan funding cut. When I suggested cutting ppl's funding during unrelated AT requests might....
..deter them from going to Internal Review, lest they lose more funding, the Complaints officer said "NDIA do not see that as a threat". They clearly stated there was nothing they could do for me.
How well is the #NDIS working now, @billshortenmp? Is the NDIA culture improving?
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I'm done with platforming those who have harmed & smeared #MECFS pts for decades. There is actual research in LC & ME, but those who run 'fatigue clinics' in Aus have a vested interest in suppressing this research. It's a 'dog's breakfast' because you make it so.
Minimising strategy = conflate a distinct illness (ME/CFS, which isn't even mentioned in this article) with vague post viral symptoms. A consultation with the broader disability community would have this bullshit on the editing room floor.
There are countless ME experts to interview instead. But I guess it's harder to discount ME patients & decades of research if you acknowledge their existence. Every LC pt testimony is undermined by this unscientific nonsense. It's like interviewing Andrew Wakefield about Autism.
On #IDPWD, I'm sharing some of my favourite quotes from submissions to the Aus #LongCOVID enquiry and joint standing committee.
"Reassurance is incredibly important because, by the time they get to see us, the patients are just paralysed with hypervigilance"
...
"We've learnt to not over-investigate"
"There is no pathophysiology"
"One of those roadblocks [to getting better] is anxiety and frustration"
- Royal Melbourne Hospital Post-Covid Clinic, source parlinfo.aph.gov.au/parlInfo/downl…
"The consequence is that COVID infections have further reduced activity levels of a huge number of individuals who were already extraordinarily inactive. This provides an attractive explanation for the high prevalence of Long COVID."