#NDIS complaints team rang me today - last year, I put in a comprehensive (24pg) assistive technology application which was denied. A planner assured me if I agreed to proceed with the review, no funds in my plan would be touched - they were just looking at the AT application. Narrator: Her funds, were, in fact, cut. & the AT application was denied. I had to find this out through a MyGov inbox message containing a new plan with inadequate repair funding for my existing AT. Why the planner targeted repairs, I don't know. But I can't service my AT now.

I'm done with platforming those who have harmed & smeared #MECFS pts for decades. There is actual research in LC & ME, but those who run 'fatigue clinics' in Aus have a vested interest in suppressing this research. It's a 'dog's breakfast' because you make it so. Minimising strategy = conflate a distinct illness (ME/CFS, which isn't even mentioned in this article) with vague post viral symptoms. A consultation with the broader disability community would have this bullshit on the editing room floor.

On #IDPWD, I'm sharing some of my favourite quotes from submissions to the Aus #LongCOVID enquiry and joint standing committee.

"Reassurance is incredibly important because, by the time they get to see us, the patients are just paralysed with hypervigilance"
... "We've learnt to not over-investigate"
"There is no pathophysiology"
"One of those roadblocks [to getting better] is anxiety and frustration"
- Royal Melbourne Hospital Post-Covid Clinic, source parlinfo.aph.gov.au/parlInfo/downl…