Vicky van der Togt Profile picture
May 16 5 tweets 2 min read Twitter logo Read on Twitter
Important for those with #LongCovid & #MECFS testing their lactate (#TheAcidTest):

The Edge recently started providing supplemental information with their meters.

It reads:
"The most common reason for inaccurate results is using a blood drop size that is too small. 👇 Note by Edge stating: "...
You should have enough blood to QUICKLY and COMPLETELY fill the test window, ideally with a little to spare.

Some people choose to perform back-to-back tests to test the meter itself for consistency. If you are doing so, it is CRITICAL to perform both tests within a minute..
or two of each other and use SEPERATE puncture locations for each test."
We reached out to them for clarification on this.

Edge advises to avoid repeated samples from the same site. This is likely because repeated figure sticks at the same site or using lots of pressure to get a 2nd drop of blood can cause some localized trauma..
damaging cells/tissues such that the 2nd sample may not accurately reflect lactate levels in the blood anymore.

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More from @Vickyvdtogt

May 13
After publishing my paper I've had many #LongCovid & #MECFS patients reach out to me. Many started testing their lactate, and some have tried one/all parts of the treatment I tried on myself.

More recently patients started messaging me saying that their PEM or POTS is gone..
I can't begin to describe how it makes me feel that patients are actually starting to feel better 🙏

I've worked on this paper for a year, and to be frank, gave up a lot to be able to get it out. I knew it was of the utmost importance that we got this published and out ASAP.
What was published was only a summarized version of the 15+ page paper we initially wrote (hypotheses papers have a strict word limit). There's much more to share on the different components of this elaborate mechanism, and so there's more to come.
Read 10 tweets
Apr 29
A lot of you have asked me about some specific aspects of the makeshift treatment I did based on the #LongCovid hypothesis paper I recently published.

A couple of answers:
What type of stretching 👇

I did full body stretching whenever I could/thought about it. And with full body, I actually mean full body. Even stretching my feet (covid toes!) and turning my ankles.

I also did Qigong and Tai Chi with the help of YouTube videos.
I actually went as far as to put up notes around the house with:

DRINK,
STRETCH,
BREATHE
POSTURE (for good blood flow)

So that I would constantly be reminded and stuck with it as much as possible.
Read 5 tweets
Apr 28
I've been busy this past weekend 🌿

On my foraging round I found:
- Siberian Ginseng
- Mugwort
- Dandelion flowers (so many)
- Valerian
- Red Clover (not ready for picking just yet)

But also: so many bees (yes!), ladybugs, and the most beautiful Orange-Tip butterfly 🦋 A photo of Siberian GinsengA photo of an Orange-Tip bu...A photo of two Dandelion fl...A photo of my kitchen count...
The end result 👌 A photo of 6 glass jars fil...
I almost forgot 🐿 this fella following me from the treetops for a bit. A photo of a squirrel sitti...
Read 4 tweets
Apr 20
Op verzoek, in het Nederlands 🇳🇱:

Een mechanisme voor #LongCovid

Ik ben heel blij om eindelijk te kunnen delen waar ik het afgelopen jaar aan heb gewerkt.

#PostCovid Een schermafbeelding van he...
Maart '22 ontdekte ik een mogelijk mechanisme voor #LongCovid.

Het was een verenigend mechanisme dat elk symptoom kon verklaren dat patiënten rapporteerden, iets wat ik nooit voor mogelijk had gehouden voor een ziekte die er meer dan 200 heeft. Toch deed dit mechanisme dat.
Tegen die tijd was ik 2 jaar bezig met mijn eigen strijd met de ziekte en wanhopig op zoek naar een behandeling die me zou kunnen helpen mijn leven terug te krijgen.
Read 20 tweets
Apr 17
After a lot of you asked about it, I decided to share the makeshift treatment that I tried out on myself based on our hypothesis.
This was not a recommendation for others to try the same thing, we need clinical testing to better understand what are the safest and most effective treatments for an acid-base imbalance. A screenshot of the paper h...
The experimental treatment worked for me, but everyone is different and has different responses.

In addition, the treatment I outlined is not the only option, as the mechanism we describe in the paper gives a lot more options for treatments and therapeutics to test. A screenshot of the paper h...
Read 10 tweets
Apr 14
The treatment

DISCLAIMER: I want to share what the treatment that helped me recover consists of and share my personal experience of doing this treatment.

However, this is not a suggestion to what people should do, as it needs to be studied and clinically tested first.
The different components: breathing exercises, gentle stretching (NOT exercise), a very specific diet, a lot of water & more.

This sounds WAY easier on paper than it was. At this point I couldn’t stand for longer than a couple minutes & I hadn’t been able to cook in some time.
As the body gets rid of excess acid through the urine, I figured that dramatically increasing my overall water intake would be a good idea.

I also added alkalizing electrolyte drops (bases) to every glass of water.
Read 21 tweets

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