For those dealing with #LongCOVID, even if you're not in edu, you can sign up for free for Microsoft Learn, get information on free tools that can support you with accessibility. Medical providers, let your patients know these resources exist. #MedTwitterlearn.microsoft.com/en-us/training…
This is horrible - up to 81 and 4 deaths. It's good @CDCgov acted fast and @US_FDA urged people to stop using eye drops even though they are only suspected and not confirmed or proved to be the cause. This is as it should be.
We know it is possible to act well & quickly, & alert medical professionals. My question is why is the same respect not being given to J&J survivors who received lots manufactured during verified contamination? Among an informal search, I have located 81, and 3 verified deaths.
The numbers are comparable to the numbers of those impacted by eye drops, with known and verified contamination problems according to FDA: fda.gov/media/150081/d…
Yet, FOIA confirms there was no alert or recall. I reached out to Dr. Woodcock and Dr. Anderson to ask for the
Sharing this tool because I'm getting asked the same kinds of questions since going live with @drbeen_medical when people say they'd prefer me to just tell them instead of looking up a website.
Good news! #AI can replace me for that! Here's an example 🧵 youtube.com/live/SsBhHMb0U…
2/ I took a screen shot to show how you can ask @bing copilot the same question you ask me about tests I mentioned and you can an instantaneous response instead of waiting for a response from me. It even has footnotes with direct links to the part of the content in the webpage
3/ then, if you're not sure what to ask next, it can even suggest questions that you might want to know and didn't think to ask yet. In the years I've presented on #AI, I repeated what I learned from a professor: if AI can replace you, it should. For basic questions that have
A year ago today, this was my hand. Negative for autoimmune conditions. I couldn’t rule out microclotting. I knew there was vascular inflammation and elevated markers for platelet activation. Now, I know. So many things can happen when blood flow is blocked. Photobiomodulation…
Has made a marked difference since starting it on my hands, that, and interestingly syntonic phototherapy. When heat does nothing, both of those do. And even though microclotting is still there, I’ve not had it this bad since starting Photobiomodulation.
I was using Photobiomodulation, Transcranial, and decided to try on my hands, for no particular reason. It felt better, but I didn’t know how to describe what felt different. After several rounds, I was outside in cold in November and my hands were warmer than people with me.
Another glimpse into NIH RECOVER study. This also means more data for Yale LISTEN study as they use @hugohealth@kindred_health to gather medical records. I’m learning a lot about what is capturing effective data & what is missed. My case made researchers aware of gaps.#LongCOVID
2/ during the 6 minute walk test, they realize @NIH provided no space for notes or to identify gait. Within 3 minutes, they noticed me tipping, gait instability (when I noted vision and burning pain in my head and nausea). None of that is captured. Yet, exertion amplified neuro
3/ This has been common - she said it looked like a stroke. Exercise stress test said I looked like altitude sickness from high elevation mountain climbers. Both witnessed changes in speech. NIH data collection doesn’t allow for capturing these crucial puzzle pieces in their data
For those stating that vaccine adverse data is incorrect in VAERS, here is the explanation from VAERS I received a few minutes ago. The public and researchers are not allowed access to verified or additional documentation confirming severe adverse events, including disability🧵
2/ Why does this matter? When researchers make valiant attempts to capture safety signals, all they have to go on is an initial report that does not include follow, evidence of verification, or corrections to reports that have been incorrectly inputted. For example, mine states
3/ publicly that I am not disabled, that there was no life threatening event, despite medical records confirming anaphylaxis (defined by CDC as a life-threatening event), and medical disability for over 21 months, with verified abnormal brain imaging, vision damage, vestibular
I was assured that an adverse event report was made on my behalf at the time of injection. VAERS could not locate it when I requested. King County provided me a number that they said was mine, but it goes to a report in 2009, a male in New Jersey. In 20+ months, no evidence. 🧵
2/ accurate reporting of severe adverse events is crucial to science. Why? Analysis is only as good as data collected. When data is omitted, analysis cannot be correct. When data is not collected, things like this occur & it undermines trust in science nbcnews.com/health/womens-…
3/ in addition, EUA mandates certain type of reporting to capture safety signals and analyze. This is not optional. Yet, it is not being done, and in 20+ months of requesting, @KingCountyWA is still unable to provide documentation of meeting mandatory requirements.