Sceptical determinist living on Bunurong land. She/Her
Jul 13, 2021 • 6 tweets • 5 min read
Here we go. #IndependentAssessments are dead in the water, but Minister Reynolds has just tipped the government’s hand on the next way they are going to attempt to cut the costs of the #NDIS. They are now going after people with #ChronicIllness.
They are going pretend now that the #NDIS was not designed for people with *health* problems. But here’s the thing. The NDIS was never intended to discriminate based on diagnosis. It was intended to support everyone with a severe and permanent impairment, regardless of the cause.
Feb 1, 2021 • 14 tweets • 3 min read
I am getting quite fed up with doctors or people in medical professions telling people with #MECFS that it is our responsibility to calmly educate *them* on our illness, rather than get upset when they stigmatise us on public platforms with nonsense about ME being psychosomatic.
The oft repeated line: “You won’t get anywhere by attacking them. Just be reasonable and give them the information they need,” is actually maddening, and not just because it doesn’t actually work that way.
Oct 20, 2020 • 23 tweets • 20 min read
1) This idea of "secondary gains" is coming up a lot this week in relation to #LongCovid. I have a few thoughts on it.
2) You can tell this concept was created by an able-bodied person who has never experienced the actual impact of chronic illness on their finances/relationships. #NEISVoid#MECFS#DisabilityPride#LongCovid
