Children & Young People’s Occupational Therapist. Professional Marmite. #AuDHD. #SEND parent. MSc student. Neurodivergent realist.
Aug 26 • 4 tweets • 3 min read
Occupational therapy and ableism. A thread 🧵
Mar 2 • 11 tweets • 2 min read
I attended a SEND parent carer forum “refresh” event yesterday. It broke my heart.
Here’s why 🧵
There was a rousing presentation about the power of working together.
There was the message of how we need to pull together to get our voices heard and be represented.
There was talk about putting on a “parent/ carer resilience workshop” to help improve our ability to co-produce effectively.
Nope. This is where I could not stay silent.
I stated: performative co-production is rife. Parents/ carers are exhausted. We are suffering real trauma
Nov 19, 2023 • 6 tweets • 1 min read
I spin a lot of plates outside of my "official" NHS role.
One of these is lobbying for better autistic services in the area I live. I co-run a voluntary project for autistic/ ADHD CYPF. I attend a lot of co-produced & community involvement meetings with commissioning bodies 1/🧵
The work that a tiny number of volunteers put into helping the SEND families in my town is staggering. The same volunteers respond to calls for public engagement, support commissioned third sector services AND continue to support their own SEND families without any recognition 2/
Jan 27, 2023 • 10 tweets • 5 min read
Let’s talk about mental health services and #autistic children shall we? A 🧵1/9
Fact: #Autistic children are human, they have emotions, they experience pain, love, joy, anger, fear. HUMAN EMOTIONS. 2/9
Oct 22, 2022 • 7 tweets • 5 min read
If a #parent of an #SEN child (esp autistic) presents as #anxious, high maintenance, needy, rude, full on or any of the other awful terminology used to describe them, what do you think might be *really* going on. Let’s unpack it 🧵