Adam Johnson - DadVocate Profile picture
Dad w/#RareDisease | #Mito | Advocate | Former Educator | Support | Kindness | Dad Jokes | #MentalHealthMatters | #PinkSocks | @Cubs | @49ers | #BoiseState alum
Jan 10, 2021 11 tweets 12 min read
Finding connections & advocating has been so helpful for me.

Here’s a thread attempt, w/my limited/developing advocacy skills.

Tips/pointers/thoughts from #RareDisease, #chronicillness, #disability, #NEISvoid, #hcldr, #patientchat communities?

Let’s use #RareAdvocacyAdvice My journey started with making social accounts, then posting a few thoughts, ideas, questions, & pleas for help. I used hashtags such as #RareDisease, #ChronicIllness, #Disability, #NEISvoid, in general, & then some that are more specific to my condition.

#RareAdvocacyAdvice