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@TheChronicCollaboration Profile picture
@TheChronicCollaboration
@TheChronicColab
A resistance movement for chronically ill & disabled people. Joining the dots between conditions. Resisting psychologisation. Fighting for justice & equality.
Apr 15 • 9 tweets • 3 min read
PROTEST #SaveCarlasLife #ExposeMENow

Carla is extremely ill in West Middlesex Hospital. Doctors are ignoring NICE guidance on severe ME & ignoring her severe POTS

You know what to do

THURS 18 APRIL
11am-1pm BST
EVERYONE ONLINE
USE THE HASHTAGS

We'll be at the hospital too 1/ URGENT #SaveCarlasLife At the request of Carla's family, we're holding a Twitterstorm at 11am on Thurs 18 April to make some major noise. This MUST TREND. Please get involved then using #SaveCarlasLife AND #ExposeMENow She is at SERIOUS risk. Tag the GMC, Royal Colleges, media, & MPs. 2/2 #SaveCarlasLife #ExposeMeNow

On this occasion we need as MANY PEOPLE at the hospital as possible for the in-person 11am 18 April protest.

Carla's family WANT & need the attention. This is in West London.

If you can make it please do. More details will follow on this soon
Apr 3 • 13 tweets • 3 min read
So #MEAwarenessHour

What are we doing for ME Awareness Day on 12 May?

Well, after decades of the corporate media pushing the psychologisation of #MEcfs (& now #LongCovid) abusing & gaslighting millions of #pwME we'll be reporting on THEM from THEIR front doors #MEAwarenessDay👇 Image ALT TEXT FOR ABOVE IMAGE #MEAwarenessHour:

ME Awareness Day 2024: the Chronic Collaboration is taking action

12 May 2024 is global ME Awareness Day (or myalgic encephalomyelitis day for those who are unsure of what ME means)

ME, like Long Covid is a post viral illness that 1/8
Mar 15, 2023 • 6 tweets • 5 min read
A thread for #MEAwarenessHour.

The Chronic Collaboration has been working with @StripyLightCIC and @arisonsned on a guide for MPs to advocate on behalf of #SevereME patients. We're pleased to say that this will be out next Wednesday. BUT - we want everyone to be involved 1/ 2/ Next Wednesday during #MEAwarenessHour we'll have a online version of the guide that everyone can see. We want people to tweet their MPs, sharing the guide with them & telling them why it's so important. We have a new hashtag for this: #MPDoYourJob4ME. But that's not all
Aug 22, 2021 • 5 tweets • 5 min read
The chronic collaboration has been created in response to the recent refusal of NICE to publish the much awaited ME/CFS guideline. Many #pwME would like to protest this decision along with the years of medical neglect & mistreatment they have faced 1/5
meaction.net/2021/08/19/sig… Due to the psychologisation of #MECFS after the scientifically flawed #PACEtrial, part funded by the #DWP btw. Not only has this caused medical abuse in patients with #ME (#MAIMES) its having a huge impact on the treatment & further investment of many other patient groups 2/5