@NICEComms have ‘paused’ publication of #MECFS guidelines due tomorrow (already delay since April)
There must be real concern that’s due to expected withdrawal of #GET & #CBT, shown in evidence reanalysis to be ineffective & harmful by patient report 1/

nice.org.uk/news/article/n… @NICEComms is held as the arbiter of evidence based medicine & consensus.
I fear that in this case, Eminence based medicine has instead prevailed.
Can it really be the case that @NICEComms can be influenced by reputation, power & connections, to go against science, evidence? 2/

Re @bmj_latest article last week ‘moving beyond controversy’ #LongCovid & #MECFS
Article that imho largely added to & repeated controversy & ignored much recent research
For which I was interviewed & quoted

There r things I REALLY need to make clear
1/6
bmj.com/content/373/bm… 2/6
I didnt see or review article prior to publication, I solely approved my quote.
During the lengthy interview, on ‘the debate over exercise & what should be happening’ I shared up to date referenced evidence of science behind PEM, potential harms of GET, debunking of PACE

ADVICE FOR #LongCovid
There IS good advice available to help with #LongCovid
#postviral #ME fatigue symptoms
There r also Snake oil salesman & opportunists looking to make money from your ill health
I was asked to collate some resources & help
PLEASE SHARE & ADD TO THREAD👇 1/6 @MEAssociation

Meassociation.org.uk/2020/11/me-ass…
Free leaflets, including comprehensive summary of latest advice & guidance re rest/pace (see photo)
Also see their advice leaflet re activity management & pacing (£1)

Dear @PaulGarnerWoof as a doctor myself, who’s been on same journey, it’s been interesting to read the evolution of your thoughts on experiencing #Covid_19 viral/postviral fatigue & then on Sx experienced by those who develop #ME/CFS . People who are so often wrongly disbelieved.

https://twitter.com/paulgarnerwoof/status/1262842451200540673

@PaulGarnerWoof to read u say,
“I am reading materials about pacing and CFS/ME and listening to the CFS/ME community. I am taken aback that doctors have been so dismissive of what these patients have been saying for so long” & to hear youve spoken to Charles Shepherd too is great