Astronomy PhD (Mars Atmosphere)|ME doing CFD by trade|Tinnitus (Adverse Event focused) research coordinator by night|Storm Chaser in the Spring|Full time Dad
I address you as an admin of a tinnitus adverse event support forum.
1/18
My only conflict is the unlikely copay reimbursement in the two thousand dollar range from CICP if I were to influence recognition, and later file a claim.
2/18
Oct 31, 2022 • 5 tweets • 2 min read
Got this from a reporter, Tom Shimabukuro at the CDC talking about me.
To clarify, there was no need for this response. I was sharing IRB approved survey data collected by a University of Arizona tinnitus researcher that had not been published.
My name is Robert Edmonds, I am an admin of one of the actually smaller tinnitus adverse event focused support forums for COVID vaccines with nearly 1000 members.
2/21
Oct 4, 2022 • 10 tweets • 6 min read
Peer reviewed papers (not anecdotal case reports) and governmental sources that indicate a link of COVID vaccination to tinnitus (even if not after a first pass). Author affiliations include the @WHO, @EMA_News, & @US_FDA. A thread 🧵, with select quotes:
who.int/publications/i…
"A recent signal detection activity at the
Uppsala Monitoring Centre (UMC) identified
hearing loss (including sudden cases) and
tinnitus following COVID-19 vaccination as a
preliminary signal to be further assessed."
They explained what masking is, and the effect on the signal for tinnitus as an adverse event within VAERS. Let me explain what I learned: 🧵
1/8
What is masking you ask?
"The masking effect is a statistical issue associated with
commonly applied signal detection methodologies in
which signals for a product of interest are hidden by the
presence of other reported products."
2/8
Aug 28, 2022 • 5 tweets • 2 min read
I was told I'm supposed to come up with clear goals with my advocacy, because I run the risk of looking antivax:
Goal 1: The FDA/CDC/NIH formally supports research via funding exploring the mechanism of tinnitus as an AE, risk factors, and treatment methods.
1/N
Goal 2: The recognition of tinnitus as a related adverse event for at least 3-4 C19 vaccines. There is now sufficient evidence to support this claim through many peer reviewed publications.