I so wish I had something good to share about GPs but here I am again drawing attention to poor practice. Telling patients with ME they're 'hyper-sensitive' to their symptoms, implying they somehow aren't real, is textbook gaslighting bordering on psychological abuse. 1/ #NHS
People with ME are often attuned to the physical manifestations of their illness because ME is a multi-system disease which at any one time inflicts on sufferers a wide range of symptoms, making their lives a living hell. 2/ #teamGP#GPnews#pwME#MyalgicE#MedEd#MEcfs#NHS
If you are a GP who feels let down by their training or just wants to improve their practice, I recommend watching this short video by Dr Kaufman on diagnosing and managing ME. 3/ #teamGP #GPnews#pwME#MyalgicE#MedEd#MEcfs#health#NHS
Remember, even if you work within a medical system whose narrow constraints make it difficult to properly treat patients with ME, your words alone have the capacity to lessen their suffering, or add to it. 4/ #teamGP#GPnews#pwME#MyalgicE#MedEd#MEcfs#health #NHS
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🧵 PART 2: A selection of #MECFS and #LongCovid research papers published in 2025 contd:
26/ 'AI-driven multi-omics modeling of myalgic encephalomyelitis/chronic fatigue syndrome' nature.com/articles/s4159…
27/ 'Heightened innate immunity may trigger chronic inflammation, fatigue and post-exertional malaise in ME/CFS' medrxiv.org/content/10.110…
28/ 'Two neurocognitive domains identified for patients with myalgic encephalomyelitis/chronic fatigue syndrome and post-acute sequelae of COVID-19' frontiersin.org/journals/neuro…
🧵 A selection of #MECFS and #LongCovid research papers published in 2025:
1/ 'Abnormal T-Cell Activation And Cytotoxic T-Cell Frequency Discriminates Symptom Severity In Myalgic Encephalomyelitis/Chronic Fatigue Syndrome' medrxiv.org/content/10.110…
2/ 'Re-visiting professional ethics in psychotherapy: reflections on the use of talking therapies as a supportive adjunct for ME/CFS and "medically unexplained symptoms" (MUS)' jme.bmj.com/content/early/…
3/ "ME/CFS is a diagnosable sequela that develops at an increased rate following SARS-CoV-2 infection." #MyalgicEncephalomyelitis #MECFS link.springer.com/article/10.100…
🧵 1/8 Continuing her impressive work with AI, @JennyWi04810918 asked ChatGPT to devise a treatment plan based on "all the confirmed published research that has been replicated in M.E., starting from 1955 to the present day." Here's what it came up with...
🧵1/11 Jenny Wilson (@JennyWi04810918) is obtaining some fascinating results using AI to interpret test results of anonymous, severely ill #MyalgicEncephalomyelitis patients who have been dismissed by their GP. In this case, Jenny didn't mention ME.
🧵 A selection of #MECFS and #LongCovid research papers published in 2024:
1/ 'Physical exertion worsens symptoms in patients with post-COVID condition : Post-exertional malaise in patients with post-COVID condition' scienceopen.com/hosted-documen…
3/ 'Dysregulation of extracellular vesicle protein cargo in female myalgic encephalomyelitis/chronic fatigue syndrome cases and sedentary controls in response to maximal exercise' isevjournals.onlinelibrary.wiley.com/doi/10.1002/je…