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As a public service, @headsUPmigraine is field-testing an @NHF article on #hemiplegic migraine!

❌ "Individuals with hemiplegic #migraine may have attacks frequently (once a week) or very infrequently (once a year)."

✔️ You can have this kind of fun ALL WEEK LONG!
✔️ "Notably, some...w/ hemiplegic migraine have unsteadiness or imbalance that isn’t just limited to their attacks of #migraine. In these individuals, incoordination/ imbalance progresses slowly over time and can be a permanent symptom."

❌ "fully reversible" HM @ihs_official
.@ihs_official I wish you were right that HM has "fully reversible motor weakness." I'm a 42-yr HM vet (50 yr daily CM). I've been homebound 15 yrs.

Tip to other rural HMers: a wheelbarrow is an excellent wheelchair replacement on grass but you need a St. Husband to drive you.
.@ihs_official Neither HM nor CM has "fully" reversible symptoms. @NHF article & Brennan describe my experience: #migraine symptoms stick if you do them every day. I'm HAPPY for difference bwn HM & stroke, but think you should include the "notably" note, too.
Official diagnosis hemiplegic migraine: ichd-3.org/1-migraine/1-2…

@NHF's good intro to HM: headaches.org/2007/11/02/925/
@headsUPmigraine's all-time favorite #migraine paper: ncbi.nlm.nih.gov/pmc/articles/P…

headsUPmigraine's all-time favorite #migraine paper without all the brain chemistry: docs.google.com/document/d/e/2…
Big hand to the mutant mice.
"By definition, the neurologic impairments of hemiplegic migraine are reversible. However, a few cases of permanent neurologic deficits associated with hemiplegic migraine have been reported." Yeah. By me. In this thread.
ncbi.nlm.nih.gov/pmc/articles/P…
"Hemiplegic #migraine may be associated with persistent neurological deficits. Thus ... a more aggressive approach to the use of prophylactic [preventive] medications in patients with ongoing attacks of HM, regardless of attack frequency, may be recommended" (link above).
Each #migraine contributes to disease progression. Preventive meds are important if you have multiple migraine / headache days monthly.

See a neurologist if you have trouble using 1 side of your body, difficulty speaking or seeing, or feel pins/needles w/ or w/o head pain.
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