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Peter Morley: "Hydroxychloroquine" is never easy to pronounce but it's such an important medication to people like me in the Lupus community who depend on this drug.
@morethanmySLE @USofCare #ProtectOurCare
Peter Morley: I don't understand where Trump is going with claiming that he took this medication. In a letter from the WH physicians, they say they discussed the risk/benefits of the medication but they didn't verify if they prescribed it or not.
@morethanmySLE @USofCare
Peter Morley:I can't imagine any *responsible* doctor prescribing a medicine like hydroxychloroquine when it isn't truly needed. I've experienced a shortage of this medication; instead of 90-day supplies I get 30-day supplies, if I can even get it at all.
@morethanmySLE @USofCare
Peter Morley: I've had to ration my supply of hydroxychloroquine since I couldn't get any of it in April; this triggered a lupus flair that put me in the hospital. Other people worry about COVID-19; I have to worry about even a common cold.
@morethanmySLE @USofCare
Peter Morley: We have flattened the curve, which is unbelievable, but people like my partner are still putting their lives on the line every single day at work. Meanwhile, Trump is in court fighting the #ACA & preexisting conditions.
@morethanmySLE @USofCare #ProtectOurCare
Peter Morley: There's so much we still don't know about COVID-19. What does it mean if we have the antibodies--are we then immune to it? How long are we contagious?
@morethanmySLE @USofCare #ProtectOurCare
Peter Morley: My partner gets up at 5 a.m., puts on his protective gear, keeps the subways in NYC moving, then comes home & disinfects himself & takes care of me the rest of the day.
It's heartbreaking to see things like the gym opening against orders.
@morethanmySLE @USofCare
Peter Morley: Trump is creating stress for millions of people who take hydroxychloroquine. He's never once mentioned the lupus community; he's never assured us that we'll be able to get the dosages we need. The media doesn't ask him about this, either.
@morethanmySLE @USofCare
Peter Morley: All you have to do is look at the study that showed veterans died from taking hydroxychloroquine.
cnn.com/2020/04/21/hea…
@morethanmySLE @USofCare #ProtectOurCare
*flare, not flair.
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