Thread by @Em23397

@apresJ20 #apresJ20 #longCovid #Covid19 Here is a study issued in the last days on viral persistence. I am one of the patient of this study. 1/n biorxiv.org/content/10.110…

If your rememember, end of July, I talked on Twitter about a swab done to me closer to the olfactory bulbs following my recurring complaints of feeling something gurggling here (I often talked about that on Twitter)..2/n

..then the doctor told me to not talk anymore about these trials, especially on social networks. Mid October I was called to be told that my PCR (usual nasal swab) done end of July was negative, like all of them, 1st one being done at 4,5 weeks) BUT 3/n

BUT that the swab made closer to the olfactive bulbs was positive . I was here still asked to not say anything before the publication was officially released, which happened these last days. 4/n

Talking about myself: I now have a formal Covid19 diagnosis as I only had PCR- and no antibodies (done recentely)..otherwise nothing new to me as, as I told you, I clearly feel infectious viral persistence and I had/have no doubt than #longCovid #apresJ20 issues come from it 5/n

.even if I hadn’t had the information I had from China beginning of year (not the official infos), which turn to be unfortunately all true, and that some doctors took seriously.. 6/n

... (then on top of that you have all the issue than viral persistence can create : inflammation, auto immune disease..etc) 7/n

For all the #longCovid #apresJ20 it’s an important step : this study now demonstrates that all persistence of smell/taste modifications mean viral persistence..and it is surely true in other organes (according to doctors). 8/n

These analysis are not routine swabs but I understood that they could be part of studies to come.
As of today, this publication can already be shared with our doctors, as before we have a comprehensive and needed care 9/n

(especially thanks to the incredible work of patients associations), we should also rely on local GP/specialists initiatives who can also have some ideas which can help doing new steps forward- who knows
10/10 #longCovid #Covid19 #apresJ20 @apresj20 👆

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