@MartaEsperti and I will then detail the rise of #LongCovid as a global movement of patient-led advocacy and research, which obtained formal recognition for long covid from the @WHO
In a second intervention, @MartaEsperti and I will address the lived experiences of those with #LongCovid: symptoms, natural history of the disease and its development over time, and the need to access proper care and early treatment
We aim to bring the focus of the #LongCovidItalia webinar beyond research to focus on people and wider science communication
Finally, A. Carfi (FGP Rome) will discuss #LongCovid in adults while D. Buonsenso @surf4children and P. Valentini from @Unicatt Rome will present brand-new data on long term #COVID19 effects in children ⏩#LongCovidKids
⏩ long term symptoms in children (#LongCovidKids) can develop also after asymptomatic/pauci-symptomatic acute #COVID19 infection
⏩ 2.3% of sample developed #MISC (multi system inflammatory syndrome)
⏩ 1.6% of sample developed myocarditis: child ❤ can be affected
⏩ few rare new diagnoses of asthma
⏩ long term symptoms caused distress to a significant portion of #LongCovidKids patients
⏩ most patients did •not• have commorbities before #COVID19
Found this paper on Mast Cell Activation in #COVID19 interesting, at least in theory, because it links #MCAS to the multi-system inflammatory syndrome in children #MISC + blood circulation issues in capillaries