Tomorrow, we are having the first Italian meeting on the long term symptoms and sequelae of #COVID19#LongCovid

A webinar organized with @LongCovidItalia @Zeta_Luiss @Unicatt @MartaEsperti @surf4children

A 🧵 on the main topics we will discuss

#LongCovidItalia
Introduction and moderation by the @Zeta_Luiss journalism team including @angelicamiglio @S_ip411

@WRicciardi @Unicatt and consultant to Minister of Health @robersperanza will discuss #COVID19 epidemiological situation in Italy with W. Malorni @Unicatt Rome

#LongCovid
@MartaEsperti and I will then detail the rise of #LongCovid as a global movement of patient-led advocacy and research, which obtained formal recognition for long covid from the @WHO

@LongCovidSOS @long_covid @apresj20 @CPersistente @apuakoronaan @itsbodypolitic @LongCovidItalia
In a second intervention, @MartaEsperti and I will address the lived experiences of those with #LongCovid: symptoms, natural history of the disease and its development over time, and the need to access proper care and early treatment

#LongCovidItalia
The photographer @MarcoCarmignan @NGeografic will bring his experience in documenting the life histories of those living with #LongCovid

We aim to bring the focus of the #LongCovidItalia webinar beyond research to focus on people and wider science communication
Finally, A. Carfi (FGP Rome) will discuss #LongCovid in adults while D. Buonsenso @surf4children and P. Valentini from @Unicatt Rome will present brand-new data on long term #COVID19 effects in children ⏩#LongCovidKids

(follow @long_recovery for international advocacy)

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More from @elisaperego78

28 Jan
#LongCovid in children 🧵on Buonsenso et al 2021 (preprint)

A cohort of 129 pediatric #COVID19 patients from Italy

⏩ over 50% experienced long term symptoms
⏩ symptoms are similar to those seen in adults (chest pain, fatigue etc.)

#LongCovidKids

medrxiv.org/content/10.110…
⏩ long term symptoms in children (#LongCovidKids) can develop also after asymptomatic/pauci-symptomatic acute #COVID19 infection
⏩ 2.3% of sample developed #MISC (multi system inflammatory syndrome)
⏩ 1.6% of sample developed myocarditis: child ❤ can be affected

#LongCovid
⏩ few rare new diagnoses of asthma
⏩ long term symptoms caused distress to a significant portion of #LongCovidKids patients
⏩ most patients did •not• have commorbities before #COVID19

#LongCovid #apresJ20 #covidpersistente #MitCoronaLeben #koronaoire #LongCovidItalia
Read 6 tweets
24 Oct 20
On the use of mast cell stabilizers in #COVID19 👇 with a list of publications starting to document positive results clinically

Mast Cell Activation #MCAS/ related mechanisms have long been discussed by #COVID19 #LongCovid patients has a potential issue beahind their symptoms
Found this paper on Mast Cell Activation in #COVID19 interesting, at least in theory, because it links #MCAS to the multi-system inflammatory syndrome in children #MISC + blood circulation issues in capillaries

Will read later #LongCovid #apresJ20

pediatricsresearchjournal.com/articles/kawas…
Read 4 tweets

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