ADVICE FOR #LongCovid
There IS good advice available to help with #LongCovid
#postviral #ME fatigue symptoms
There r also Snake oil salesman & opportunists looking to make money from your ill health
I was asked to collate some resources & help
PLEASE SHARE & ADD TO THREAD👇 1/6
@MEAssociation

Meassociation.org.uk/2020/11/me-ass…
Free leaflets, including comprehensive summary of latest advice & guidance re rest/pace (see photo)
Also see their advice leaflet re activity management & pacing (£1)
@theRCOT

Rcot.co.uk/conserving-ene…
(Royal college of Occupational therapists)
Info & details re The 3 Ps principle (Pace, Plan and Prioritise)
Learning to pace, plan and prioritise your daily activities will help you to save energy.
@PhysiosForME
PhysiosforME.com/covid-19 What is PVFS/Long Covid - How to Assess and Identify. Good videos & info on growing LongCovid knowledge
Management of PVFS/Long Covid & precautions against usual exercise-based approach
Links to videos tutorials & LongCovid physio support grp
@actionforme

actionforme.org.uk in Resources page, accessible from front page (blue box at top)
Though for ME, include v useful advice re speaking to Dr, employers & carers & how carers can help
All that would apply for LongCovid/ postviral fatigue syndrome
@MEActNet @MEActNetUK

meaction.net/long-covid-me-…

meaction.net/covid-19/
⁃support group for LongCovid
⁃Info, articles, media coverage LongCovid
⁃Resources to help with attending doctors & hospital
Re #LongCovid advice & support as per above thread, please everyone share, tag & add to above thread
@amyismall @ahandvanish @LongCOVIDPhysio @LongCovidSOS @Dr2NisreenAlwan @ManeeshJuneja
@ClaireHastie1 @elisaperego78 @long_covid please have a look at this thread to see if its helpful re #LongCovid #LongCovidKids & share, add to it if so, thanks
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More from @bendymarsh

20 May 20
Dear @PaulGarnerWoof as a doctor myself, who’s been on same journey, it’s been interesting to read the evolution of your thoughts on experiencing #Covid_19 viral/postviral fatigue & then on Sx experienced by those who develop #ME/CFS . People who are so often wrongly disbelieved.
@PaulGarnerWoof to read u say,
“I am reading materials about pacing and CFS/ME and listening to the CFS/ME community. I am taken aback that doctors have been so dismissive of what these patients have been saying for so long” & to hear youve spoken to Charles Shepherd too is great
@PaulGarnerWoof so much work is being done by charities & individuals to advocate for patients but also to teach, educate & convince many doctors that these symptoms are REAL, debilitating & MUST be believed & correctly advised & managed.
@MEAssociation @MEActNet @actionforme
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