Thread by @CollagenThief

This! I was denied mobility aids well into my progression because of claims that I was “too young” to start “deconditioning.” PT and building muscle doesn’t replace my need for aids. They are worth fighting for. #DisabilityHasNoAgeRequirement #EDS #CerebralPalsy

https://twitter.com/the_tweedy/status/1370068386131046404

2nd hand mobility aids is the best most can do when faced w doctors and insurance companies that don’t understand #EDS. As much as I’d like a wheelchair that truly fits, having any chair has saved my quality of life. New rollators with seats are about $80 self pay online at Drive

For me it is especially important to rely on mobility aids until I collect the right braces my #EDS joints need. Otherwise I push them out of socket for ADLs w lasting consequences. Because of aids and braces, I’m MORE able to do PT/exercise. It’s the opposite of deconditioning.