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15 Mar, 7 tweets, 2 min read
A thread for #MECFS, & related, research papers from w/c 8th March.

Links will be to our forum discussion threads, where abstracts, links to paper, analysis and discussion can be found. Inclusion in this list does not equal recommendation.

1/7
"Analysis of antibody data using Finite Mixture Models based on Scale Mixtures of Skew-Normal distributions" by: Domingues et al.

s4me.info/threads/analys…

2/7
Perspective article: "Ross River virus immune evasion strategies and the relevance to Post-Viral Fatigue, and ME onset" by Lidbury.

s4me.info/threads/ross-r…

3/7
“Three cases of severe ME/CFS in adults” by Williams & Isaacson-Barash.

s4me.info/threads/three-…

4/7
“POMME: Paediatric Outcome Measure ME - Measuring Health in Children With CFS/ME: Testing a New Questionnaire” by Crawley et al

s4me.info/threads/pomme-…

5/7
“Long COVID and the role of physical activity: a qualitative study” by Humphreys et al.

s4me.info/threads/long-c…

6/7
Critically examining the evidence of “The Wessely School approach to ME/CFS and MUS.” by Marks

s4me.info/threads/articl…

7/7

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More from @s4me_info

Science for ME online forum Profile picture
8 Mar
A thread for #MECFS, & related, research papers from w/c 1st March.

Links will be to our forum discussion threads, where abstracts, links to paper, analysis and discussion can be found. Inclusion in this list does not equal recommendation.

1/7
"Effects of Post-Exertional Malaise on Markers of Arterial Stiffness in Individuals with ME/CFS" by Bond et al.

s4me.info/threads/effect…

2/7
"Reduced endothelial function in ME/CFS - results from open-label cyclophosphamide intervention study" by Sorland et al.

s4me.info/threads/reduce…

3/7
Read 7 tweets
Science for ME online forum Profile picture
15 Feb
A thread for #MECFS, & related, research papers from w/c 8th Feb.

Links will be to our forum discussion threads, where abstracts, links to paper, analysis and discussion can be found. Inclusion in this list does not equal recommendation.

1/7
“Gut dysbiosis in severe mental illness and chronic fatigue: a novel trans-diagnostic construct? A systematic review and meta-analysis” by Safadi et al.

s4me.info/threads/gut-dy…

2/7
"Insights from Invasive Cardiopulmonary Exercise Testing of Patients with ME/CFS" by Joseph, Systrom et al.

s4me.info/threads/insigh…

3/7
Read 7 tweets
Science for ME online forum Profile picture
8 Feb
A thread for #MECFS, & related, research papers from w/c 1st Feb.

Links will be to our forum discussion threads, where abstracts, links to paper, analysis and discussion can be found. Inclusion in this list does not equal recommendation.

1/11
"ME/CFS: Where Will the Drugs Come From?" by Toogood et al.

s4me.info/threads/review…

2/11
"Chronic fatigue syndrome: Abnormally fast muscle fiber conduction in the membranes of motor units at a low-level static force load" by Klaver-Krol et al.

s4me.info/threads/cfs-ab…

3/11
Read 11 tweets
Science for ME online forum Profile picture
1 Feb
A thread for #MECFS, & related, research papers from w/c 25th Jan.

Links will be to our forum discussion threads, where abstracts, links to paper, analysis and discussion can be found. Inclusion in this list does not equal recommendation.

1/
"In-Depth Analysis of the Plasma Proteome in ME/CFS Exposes Disrupted Ephrin-Eph and Immune System Signaling" by Hanson et al

s4me.info/threads/in-dep…

2/
"ME/CFS: The Human Herpesviruses Are Back!" by M E Ariza.

s4me.info/threads/articl…

3/
Read 10 tweets
Science for ME online forum Profile picture
18 Jan
A thread for #MECFS, & related, research papers w/c 11th Jan.

Links will be to our forum discussion threads, where abstracts, links to paper, analysis and discussion can be found. Inclusion in this list does not equal recommendation.

1/
"Reversible widespread brain 18F-FDG PET hypometabolism in chronic fatigue syndrome treated by hyperbaric oxygen therapy" by Guedj et al.

s4me.info/threads/revers…

2/
"Salivary DNA loads for human herpes viruses 6 and 7 are correlated with disease phenotype in ME/CFS" by Lee, Lacerda, Nacul, et al.

s4me.info/threads/saliva…

3/
Read 4 tweets
Science for ME online forum Profile picture
23 Aug 20
Why are the #MECFS patient community concerned for #LongHaulers who might try to exercise themselves back to health?

Watch these two videos that look at the evidence against Graded Exercise Therapy for the often post-viral ME/CFS.

#LongCovid #PACEtrial

dialogues-mecfs.co.uk/films/graded-e…
Independent re-analysis of the the largest trial that claims benefits of GET and CBT.

"The modest treatment effects obtained on self-report measures in the PACE trial do not exceed what could be reasonably accounted for by participant reporting biases."

bmcpsychology.biomedcentral.com/articles/10.11…
A 2017 analysis of patient surveys by @keithgeraghty shows GET is rated negatively by the majority of patients (54%–74%), while pacing "is the most favoured treatment with the lowest negative response rate and the highest reported benefit (44%–82%)."

journals.sagepub.com/doi/10.1177/13…
Read 6 tweets

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