I had to send a 26 year old patient to the hospital yesterday after a telehealth visit.

He is living with #HIV

Had lymphoma 5 years ago requiring surgery and chemo

Has syphilis titers that have stayed elevated for 2 years, even after outpatient penicillin treatment.
1/
Now is having fevers, nightsweats, headaches, blurry vision, and unintentional 10 pound weight loss in two weeks.

His T cell count dropped from 200 to 100, even though he is taking his HIV meds and has an undetectable viral load.

I gave him my cell number just in case.
2/
The admitting hospitalist reached out to me this morning.

Him: "Your patient gave me your number. I guess he wanted me to call you with updates."

Me: "No, I gave him my cell phone so you could call me if you needed more information for your clinical decision-making."
3/
He proceeded to tell me he thought our patient's symptoms may be due to the 1st #COVID19 vaccine he received a few days ago.

Also that his blood tests were positive for mononucleosis.

Me: "Antigen or antibodies?"
Him: "Antibodies."
Me: "IgM or IgG?"
Him: "I'm not sure."
4/
Me: "So all you know is that he may have been exposed to mono in the past."
Him: "Correct."

He then mentioned getting a full body CT scan to check for lymphoma.

Good idea.

Him: "And we will get ophthalmology to come look at him, but that may not be til tomorrow."
5/
Me: *silence*
Him: "... and, I mean, I guess we could do a spinal tap."
Me: "That would be clinically appropriate, yes."

I told him that I've seen 2 cases of ocular/neuro syphilis in young men living with HIV in the past 2 months.

Folks can go blind if not treated early.
6/
Getting this clinician to follow recommended guidelines felt like pulling teeth.

I know many medical professionals don't value Black life.

I do.

Laziness and racial bias can cloud sound clinical judgment.

Don't let it.

You might save someone's life.
7/

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More from @DMalebranche

25 Mar
Did a follow up call with a patient this morning. Gave her her #HIV lab results:

- T cell count over 1000
- Viral load undetectable

No reaction. It was expected. We spoke about other referrals before concluding .

"Anything else I can help you with?" I asked.

She paused.
1/
"Doc, I have a question, but it's more personal."

"Shoot," I responded, unsure where this was going.

"Do you know anyone in the medical field who is living with HIV? Before my diagnosis I wanted to go into the field but I didn't think I could after that."

My turn to pause.
2/
"You're speaking to one," I said.

I could feel the weight lift from her shoulders through the phone.

"Living with HIV doesn't mean you can't work in the medical field," I continued. "There are many people who are HIV positive and work as doctors, nurses, every position."
3/
Read 5 tweets
6 Mar
A young Black man has been living with #HIV for 4 years.

He is adherent with his meds. The lab report shows he has been undetectable since he started treatment.

He works 16-hour days in a factory and is seen at a busy urban HIV clinic.

He has private insurance.
1/
His last in-person visit with the clinic was in January 2020, right before the #COVID19 pandemic shut the world down.

All was well during that appointment.

His doctor continued his prescription with a year's supply of refills.
2/
He is scheduled a 3 month follow-up telemedicine appointment during the #COVID19 pandemic.

All continues to be well at that visit.

It's April. Flowers are beginning to bloom.

He is given another telemedicine appointment 3 months later.

He misses that one.
3/
Read 10 tweets
21 Nov 20
1/
I went to a local @cvspharmacy today to get my second shot of the Shingrix vaccination.

This is the vaccine that helps protect people over 50 years old from getting the painful reactivation of the childhood chickenpox virus.

Also known as shingles.
2/
The pharmacist was kind. Applied a discount to offset the cost. Gave me the obligatory medical information and consent form to sign.

I did.

He "gently agitated" the vaccine mix in front of me.

To my surprise he came around the counter to give me the shot.
3/
"Which arm?" he asked.

I took my left out of my jacket.

As I turned away from him, I noticed a Black woman staring at me.

Her eyes wide in a mix of horror and surprise.

She was picking up her medications, but got distracted.

I knew exactly what she was thinking.
Read 8 tweets
29 Aug 20
1/
Chadwick Boseman died from colon cancer at 43.

I am sad that this talented brother lost his earthly life to this disease at such a young age.

Most of us don't know the details of the screening, diagnosis, and treatment journey he endured.
#ColonCancer
#SaturdayThoughts
2/
What I do know is that according to the @AmericanCancer, colon cancer screening is recommended starting at age 45.

I also know that Black people suffer disproportionate health inequities related to colon cancer compared to other races/ethnicities.
3/
We suffer these inequities not just because "we don't screen as much," but due to issues with access to care, insurance, public health outreach, and provider bias.

The same factors that drive racial health inequities from #COVID19, #HIV, and numerous other health conditions.
Read 11 tweets
29 Jul 20
1/
I am leaving academic medicine for the 2nd time in my life.

I am walking away from the combination of job duties I love most:

Service
Teaching
Research

I didn’t leave because I felt disrespected or unacknowledged as a Black faculty member.

That was the 1st time.
2/
I left this time because I had to.

I had to stop putting everyone else first while throwing myself under the bus.

I had to refrain from running into brick walls that I knew were not moving or capable of being toppled over.

I had to accept that my healing is important too.
3/
I had to acknowledge that I have yet to truly grieve over my deceased father.

I had to admit that #COVID19 has changed me.

I had to stop to catch my own breath instead of only helping everyone else catch theirs.

I had to realize I was exhausted and needed a break.
Read 5 tweets
31 Mar 20
1/
I know a lot of folks living with HIV are worried about coronavirus.

It's understandable. Everything is crazy right now.

We are learning more about it daily.

We are hearing stories about people getting sick and dying.

It's ok to be anxious and nervous about it.
2/
It's already enough living with HIV. Any fever, sniffle, or rash can cause panic and concern.

It's scary. All of it.

But you know what?

We know a good amount about COVID-19. There are good resources where you can empower yourself.

cdc.gov/coronavirus/20…
3/
@CDCgov has great information that is updated every day.

@TheBodyDotCom presents facts that are easy to read and gives great tips on how you can navigate this pandemic AND thrive with HIV.

thebody.com/health/hiv-cor…
Read 7 tweets

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