Ade Profile picture
19 Apr, 7 tweets, 3 min read
The problem about parents speaking about their autistic kids is that their target audience are other parents with autistic kids. They often don't consider how autistic people will feel hearning what people like Mark Rober have to say. It's about us, without us.
This has been said over and over again, by multiple #actuallyautistic people and yet those voices are still not heard by mainstream media. They don't care about truly helping us, just making it look like they care. Because they care more about their own feelings than our own.
Listening to autistic people means they have to dismantle decades of paternalistic abuse. They need to admit they did wrong (and that they're still doing wrong). They need to publicly admit ABA is abuse. It's a lot of work, so they'd rather keep their oppressive discourse.
Every time they get called out on it, they attack autistic adults and call us ungrateful and rude. They lash out and make themselves the poor victims who just wanted to help. We're portrayed as the bad, ungrateful ones.

We haven't forgotten about Sia and we never will.
We want allistic people to listen to our struggles.

We don't want them to take the behaviors THEY find annoying and try to correct them by force when they're natural, self-regulatory behaviors and they don't hurt anyone. That's not what we need, that's what they want.
Instead of changing society's perspective on what's socially acceptable, they're forcing autistic kids to imitate allistic behavior, repressing and hurting them in the process.

#AutismAcceptanceMonth is a joke. They don't want acceptance, they want to shape us to their image.
If you got this far and really wanna learn about Autistic people from autistic people, I recommend you following @AutSciPerson @commaficionado @ItsEmilyKaty @lilririah @AnnMemmott @erikaheidewald @AshleighJMills and many more.

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More from @ADHDelaide

21 Apr
Functioning labels are so focused on productivity that they overlook the most important question: What do you need support with?

Needs are individual. People with the same disability don't always benefit from the same accommodations or support measures. Thread 🧵1/
Our needs are the end result from the interaction between core traits, co-occuring issues and coping mechanisms. They're also different depending on our cultural, political, socioeconomic, and racial background. There's no simplifying that.
Functioning labels are particularly harmful for those who suffer systematic oppression. That's why racialized and poor people are more likely to get a low functioning label, or be deemed problematic. This is why disability should always be addressed as an intersectional issue. 3/
Read 11 tweets
12 Apr
If you relate to tweets about ADHD or highly suspect you have it, don't let that thought go. If you leave it for later, you'll forget, swept under the rug. That's what our brain does.

Many of us wish we had known sooner. It could have saved us a lot of angst and suffering.
Sometimes it's hard for our brains to confront that reality until we're at breaking point. Don't let it get to that; a lot of us did and it's not a nice way to figure it out. It comes with regret, shame and a long recovery.
ADHD makes awareness of time terrible. You blink and it's been 3 years since you first thought that maybe you had ADHD, and now you're in a rough patch and can't figure out why. And you've forgotten you've been there before. It's a loop.
Read 4 tweets
11 Apr
What people think ADHD is: little boys bouncing in their chairs, not paying attention.

What ADHD is: Not being able to do the things you want to do, get chastised, blame yourself for it. Repeat until any rejection feels unbearable and emotionally painful. Suffer in silence.
The perception people have of ADHD and our reality are very different. Inattention and hyperactivity can be annoying, but they're not that debilitating. Usually, the most impairing traits are our inability to start tasks we want to do and difficulty controlling our feelings.
While inattention and specially hyperactivity are more visible from the outside, emotional dysregulation and difficulty initiating tasks can be more easily camouflaged, and they might go unnoticed. It's important to know them and address them to improve quality of life.
Read 4 tweets
9 Apr
Hot take but many inspirational quotes are ableist; "just do it! will is power! The power of the mind!". That's exactly what ADHDers cannot do. Like, neurologically cannot do. Also true for other neurodivergent people, brain fog, chronic illness, etc.
There's so many scenarios where people cannot "just do it". And yet it keeps being pushed down our throats and we're shamed and made feel like failures when we can't achieve those unrealistic expectations. Making everyone believe the power of will is enough is a big, ableist lie.
That "will of power" discourse inevitably leads to "if they don't do it, they must not want to do it". So people who cannot do it start hearing "you don't care. You're selfish. You're lazy". That's where the guilt starts. The self deprecation. The depression. The distress.
Read 7 tweets
7 Apr
Thinking about all those undiagnosed ADHDers who are teenagers now.

It's one of the hardest times of our lives. It's often dismissed as "a normal teen phase" and our suffering goes unnoticed, so we think it's normal to feel wrecked by minor rejections. And it's not. 🧵
During that time, low tolerance to frustration reaches new levels. It's something present in both teenagers and ADHD, so it's explosive. Irritability and anger can also be common. They're almost impossible to control, and we keep being blamed for it, worsening everything.
Feelings are the biggest issue. Hormonal changes heigthen feelings in teenagers. Adding that to the intense, overwhelming feelings many ADHDers feel, every little thing feels like the end of the world. It's wrecking, it's not pretty.
Read 8 tweets
11 Mar
Anxiety and ADHD, a thread.
Some ADHDers use anxiety as a coping mechanism to do stuff. You might've heard of "last minute panic", the rush of adrenaline caused by a deadline that will put your brain to work. While it might happen to people without ADHD too, many ADHDers rely purely on this to keep going.
ADHDers without anxiety as a coping mechanism are more likely to end up missing deadlines, so their grades are more likely to fall and they're more likely to get an ADHD diagnosis (they might be missed too, though). Meanwhile, anxious ADHDers will likely remain unnoticed.
Read 11 tweets

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