Discover and read the best of Twitter Threads about #actuallyautistic

Most recents (24)

Hi 👋 Can we talk?

Listen - don't be afraid of what I'm going to say here, okay?

It's going to involve me talking about the end of my life.

I need to say these things, outloud. I need people to know how hard I tried, how hard I fought, how serious I took it all.

Ready?
My name is Patricia George-Zwicker, I'm 51 yrs old. I'm #ActuallyAutistic, #disabled & have had #mentalillness since I was a kid.

I have #PTSD, #CPTSD, #depression, #anxiety.

Abuse began in my life when I was 5 yrs old. It was daily. It went on for 15 years. Daily. Relentless.
My abuse was extreme.

Are you hearing me?

Exteme. Daily. Relentless.

But I had to hide it all. Hide the abuse and the physical signs. Hide that I wasn't like others kids in truly fundamental ways. I'm Autistic. Dyslexic. Dyspraxic. Disabled.

You know, the freak, the weirdo.
Read 13 tweets
(1/4) Not all autistic people want to be cured & not all autistic people want to be autistic. The autistics I’ve met who DO claim they’d prefer a cure have a history of pain, suffering, & abuse. When an autism parent highlights this painful history in an argument, they are
(2/4) weaponizing it to claim some autistics are privileged & cannot have a voice or opinion on this matter. Where does this obsessive need to control the narrative come from? Are you advocating for ALL autistics of ALL abilities, or are you advocating for YOUR financial gain?
(3/4) Using first-hand accounts of other autistic people’s wish to be neurotypical as a way to further your agenda is NOT autism advocacy. It is exploiting their pain & suffering while attempting to prove autistic privilege exists to control the conversation around autism.
Read 4 tweets
"Autism moms" joking and memeing about how "dealing with" an autistic kid has made them "vets" of social isolation is gross on so many levels.

Rant incoming.
For one, we're facing a nasty pandemic that's literally shutting countries down.

Now, I realize that the real "super power" that autism moms possess is to make literally everything ALL about them, but for this once... Could. You. NOT?

Good lord.
Secondly, "Vets"? Does anyone else get grossed out by the use of military/battle/war terminology used by "autism moms".

Not only are they "vets" "battling" us in their "war on autism", they frequently compare their stress levels to wartime soldiers.

You're no vet, Karen. Sit.
Read 9 tweets
Dealing with the #COVID19 crisis when you’re autistic - some advice.

Most important: heed public health advice applicable to your region.

Public health is the medical specialty which deals with this issue and the public health doctors are the experts.

I’m not a PH doctor.
Wash your hands well & often
Cover your coughs & sneezes
Don’t touch your face

Travel restrictions
Social distancing
Self isolation if exposed

However, some of that advice to avoid #COVID_19 will impact us differently to non autistic people, and that’s what this thread is about
First the positives. We’re going to have much less trouble with social distancing than the non autistic population. In general we don’t casually touch, hug or kiss other people as much as NTs do. Staying home & avoiding people for a fortnight doesn’t fill us all with dread.
Read 12 tweets
I see in parenting groups parents not wanting to seek diagnosis for their children to not "label" them ASD or ADHD. Here are some labels I recieved not having a diagnosis. Lazy. Weird. A Failure. Daydreamer. Manipulative. Attention seeker. Odd. Self-centred. #ActuallyAutistic
These labels given to me due to an expectation I behave neurotypical was damaging to me. Far more so then the "label" ASD or ADHD. I believed I was a useless person before my diagnosis. #adultadhd
Learning about my neurodiversity helped me understand myself and give me self the compassion I deserved. I am not lazy. I just struggle to focus due to a neurological condition. I am not manipulative. I get huge sensory overhwelm which causes meltdowns. #ActuallyAutistic
Read 6 tweets
.@Ed_quanto Would it be possible to know how you ended up asking J. Schovanec to write the foreword of the upcoming French version of @stevesilberman 's Neurotribes. The last itw he gave says the opposite of what is in the book : informations.handicap.fr/a-schovanec-au…
I know he is one of the main references in the French speaking autistic community, but since the last few months, the more he speaks in public, the more damage he causes to the community. Having his name associated with Neurotribes is actually harmful to us #ActuallyAutistic .
#AskingAutistics and whoever feels like it for #Help and #RT
Read 3 tweets
Whoa. (formally diagnosed, not that one has to be to be #ActuallyAutistic)
That last bit about eye contact making it harder to think. OMG.
Weirdly it isn't a problem over videoconferencing, and we actually prefer seeing people's faces on conference calls.
Read 3 tweets
🎭The Masked Autistic Quiz🎭

If you’ve spent your life ‘faking normal, you might not look autistic to the casual observer. So I’ve made a questionnaire that’s tailored to the masking autistic adult.

#ActuallyAutistic #AllAutistics
This isn’t an official test, and I am not a doctor. But if you find yourself answering ‘yes’ to many of these questions, you might want to look into the possibility that you’re an undiagnosed autistic.
1. Have you ever felt as if you were missing the built-in instruction manual that everyone else seemed to possess?

Did you spend an inordinate amount of time learning to copy the behavior of other kids so that they wouldn’t realize you were different?
Read 31 tweets
Well, last night's feeling that April is starting *early* was validated today, with @autismspeaks 's announcements.

So, as a PSA for those who want to do right by #ActuallyAutistic people ... Don't buy into it. Any of it.

It sounds lovely, but is very problematic. (Thread)
The idea that the change of logo design came from *listening* to autistics is laughable at best.

Someone who was listening wouldn't have merely re-coloured the puzzle piece that the community finds offensive.
They wouldn't have left the dominant colour blue, as they would have heard the community's thoughts on how the gendering of autism hurts girls, women, and non-binary folks when it comes to matters of DX and representation.
Read 13 tweets
Inspired by @AspieHuman. I will make my own thread of being #actuallyautistic and that's OK. (Note: I did not know I am autistic until 25.) 1/
In elementary school in the Hong Kong, I was quiet. I didn't quite fit in with my classmates in an all-boys elementary school. However, I received quite a bit of hazing because of my arts and crafts skills. 2/
In middle school in the USA, it was my first regular exposure to girls in 6 years. There were 2 girls that I liked when I was with them in GATE (short for Gifted and Talented Education program) class. However, my shyness + lack of confidence in English held me back. 3/
Read 12 tweets
Why feeling like ‘I don’t fit in’ is different for #ActuallyAutistic’s to non-autistics - a thread. /1
It’s true that many people feel like they don’t fit in, especially teenagers. These feelings should never be ignored, as that can have serious consequences. However, feeling like you don’t fit in is majorly different for autistics than it is for non-autistics. /2
Most autistics grow up feeling different. In fact, ‘always having felt different’ is a key feeling which unites the #ActuallyAutistic community. When one feels different, this tends to lead to feeling like you don’t fit in, because you are not like everyone else. /3
Read 14 tweets
The autism spectrum represents differences in cognition, sensory processing, verbal communication, adaptability, repetitive behaviors, social awareness, and so forth.

If each difference has its own color, then we aren’t just ‘on’ the spectrum. We’re all over it.
The autism spectrum also changes for each person over time.

Somebody may be ‘high functioning’ in certain areas under normal circumstances, but lower functioning during shutdown or burnout.
Read 6 tweets
I'm proud to have worked with a fantastic group of activists to help develop @BernieSanders's disability policy plan. (1) #CripTheVote
@BernieSanders It's an impressively comprehensive document, worth reading in all of its 13,000+ words, but there are a few items I think are particularly worth highlighting: #CripTheVote (2)
@BernieSanders The plan starts with a number of actions the executive branch can take to advance disability rights without relying on Congress. Given the current state of gridlock, that's a big deal. (3)
Read 16 tweets
Here's my latest* update to my vetted collection of Twitter Disability and Chronic Illness hashtags. Please share it!

Thank you :-) Graffiti background. Foreground in black letters on a  white background to the left reads “Twitter Disability and Chronic Illness Hashtags”<br />
This collection is current as of 01.30.20, previous Twitter update 09.11.19.

There's a PDF version coming up this weekend, to be posted to my Kofi profile. I'll add the link toward the end when it goes up, after the questions, where you can also sign up for email updates.
This version has added

- community suggestions,
- mental health hashtags,
- Medical crowdfunding hashtags,
- and a section for cancer-related hashtags.
Read 84 tweets
When I was little, my older brothers were diagnosed w/ Asperger's. This was in the 80's & early 90's when we didn't know much abt the condition. But my mom--I got lucky w/ my mom. She did tons of research on the condition, she never shamed my brothers, & welcomed it as a gift.
When I was 9 or 10, my mom had me tested. I am an outlier in autistic women; I got my diagnosis as a child. This was around 1998-1999, so they talked about prescribing medication for me since I wasn't doing well in school. I firmly, firmly refused. I promised I would do better.
Somewhere around that time, I resolved to be more normal. Act like other kids. Not clap my hands over hands when I flushed a toilet because the sound hurt my ears, observe my female friends and mimic them, not wander around on my own telling stories to myself at recess.
Read 20 tweets
The first thing I saw on Twitter today - just awful. I have a few #ActuallyAutistic thoughts on this bigotry and misinformation.

A thread, assuming I can figure out where to even start. What a mess.
I guess let's go top down.

If we "appear unresponsive", it's because we're ignoring you, Karen. Allistic people tend to have no idea how loud and obnoxious they can be, never mind how overbearing and in-your-face they can be. It's all too much- shutting down helps shut it OUT.
"Eye contact" is a thing that varies wildly from culture to culture, and feels/means something different to different people. Would you be so dehumanizing about people from a different country who aren't as obsessed with making.maintaining eye contact?

Wait, don't answer that.
Read 20 tweets
Cn childhood trauma, ablism

#ActuallyAutistic #AskingAutistics
I have a theory I'd like input on: that alexthemia is so common in autistics largely bc it's a c/PTSD response that happens to be an incredibly common result of the way our emotional responses are /1
Cn abuse, ablism, panic attacks

Gaslit and punished starting from childhood

Basically i recently had a thing were i was experiencing a lot of stress but repressed it wo realizing i was doing so until it induced a panic attack /2
Cn ablism, abuse, panic attacks

And even after identifying the things that had been stressing me out, a part of me kept trying to say those things weren't enough to warrant having a panic attack over. There must be a better justification /3
Read 25 tweets
I’m autistic. I don’t have autism. #ActuallyAutistic
I am autistic. I don’t have autism.

I can’t put my autism down or leave it behind. It is essential to who I am and how I experience the world.

I am autistic.

#NOTwithAutism #ActuallyAutistic
Autism isn’t a friend, or an accessory.
It’s not a sickness or a disease.
I’m not vaccine injuried. I’m not broken. I’m not a burden.
I’m autistic.

#NOTwithAutism #ActuallyAutistic
Read 4 tweets
What people have done in focusing on 45's attack of Greta Thunberg rather than amplifying her Person of the Year award for her activism is become complicit in his appropriation of her moment. No one has centered her work or her value as an #ActuallyAutistic activist.
Even leveraging his attack as an excuse to discuss gendered ableism victimized someone who is a singular teen leader for the greater good of our planet. That was why she won @TIME Person Of the Year. To make her work matter.
We need to refocus and make this about her monumental achievement and not about an old man who cannot bear to see such a young person achieve so much.
Read 3 tweets
Welcome to #SchizoChat, the biweekly forum where we discuss a question about life with schizo-type disorders. I’ll ask questions and drop fun facts about the topic in this thread. Today’s topic is caring with someone with a schizo-type disorder!
As usual, please ask me your questions. I’ve been super busy running an experiment so I’m behind typing these out but I’ll get back to you as soon as possible. #SchizoChat
We here at #SchizoChat respect everyone’s opinions—please be courtesy and remember that these topics are really personal for people. We all have different experiences and that is good!
Read 127 tweets
This thread is in response to a recent thread by @leoniedelt that was interesting & provocative & hopefully won’t be a magnet for trolls, but as it stands, deserves a healthy debate.

As a bereaved parent & multiple trauma survivor & a psychiatrist of 30 years & a multiply

/1
#Disabled #ActuallyAutistic & #AutisticParent, I am very accustomed to being a member of heterogenous groups that share one overarching life experience that sets them apart from the rest of society.

In a bereaved parents’ group, we are there to support one another

/2
unconditionally.

Everyone is in the same boat, having suffered unimaginable loss, so it really isn’t cool to create a hierarchy of suffering based on how old your child was when they died or their cause of death or how many children died or how many are still alive or

/3
Read 25 tweets
#AskingAutistics #ActuallyAutistic #AllAutistics

Forms of affection other than 'standard' physical contact (e.g. hugs, hand-holding), eye contact, and saying 'I love you'.
Please reply with any you can think of.
Saying 'I like you'. For some reason, 'I love you' is considered this massive thing, yet 'I like you' is barely thought of. I find something very profound in it and think liking someone can be just as important as loving them.
Giving them a nice rock.

Rocks are good.

Though I would probably feel bad about moving the rock from it's "natural habitat".
Read 22 tweets
It's more clear than ever that my mom is autistic AF. But she presents so utterly different than me and my kid it's bizaare.

But also super frustrating bc well, as my also #ActuallyAutistic bf said today,
"I can't tell if your mom is just always very angry and resentful or if she's just too autistic to realize she always comes off that way when she talks, aka yells, at people."

Like, she's always way loud and verbally agressive which seems angry.

As I told bf,
"Yes. Both, because she often comes off that way, and then IS ~always angry and resentful because everyone always thinks she is & she gets pissed.

And she gets mad/anxious many times a day to the point of verbal aggression from misunderstanding everyone else around her too."
Read 6 tweets
THREAD

I *hate* everything Tom Clements writes.

He only punches down at other autistics, pretending it's ok for him to self-advocate, but not us.

His brother is not the only teen/adult in diapers. He's not the only 1 with significant LD.

TC has NO clue.

#ActuallyAutistic
Those of us who spend inordinate amounts of time rebutting him; I want to ask you to please, please stop.

Don't QT him. Don't reply to him, 10x, with reasonable criticisms of his ludicrous, harmful nonsense.

Report him when he harrasses, uses slurs, etc; but otherwise, ignore.
He's not interested in ANYTHING you have to say.

His brother = the reason he thinks he's an advocate.

For some reason, your own non-speaking teenage kids, or your own history of delayed speech, or your current need for help with personal care/toileting, won't be good enough.
Read 8 tweets

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