🧩 Autism politics question

You know how the ABAmongering 'experts' are happy to share a stage with Temple Grandin, Stephen Shore and John Elder Robison, because they know those guys won't bite their heads off --

So, question: Who are their favourite famous AAC users?
I ask this, because it seems to me that they are anti-AAC because of the things that AAC users say.

Seems like, "We like working with people who are intelligent yet know their place; but we can't find any AAC users who know their place now that Carly Fleischmann is gone."
And I don't even mean that Carly was tame; it's just that she had the kind of personal goals that wouldn't necessarily bring her headlong into confrontation with 'autism experts' very often.
OK, I've asked this question in an AAC user group too now. So far, nobody knows of anyone. The basic vibe is, "If you can speak, you're not allowed to say anything about nonspeakers, and if you can't speak, nothing you say by any means counts."
One even said that an ABA expert at a conference said that #AAC is not "evidence-based".

So you can imagine what kind of "evidence" the human-rights-abuse-promoting guest editor of this special edition is looking for for engaging with "the community".

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More from @ekverstania

7 May
[THREAD] I wanna show you an example of what presuming competence with nonspeaking autistic children means.
This is a lesson on fractals, prepared by Vicky Oettle, a teacher at a school for nonspeaking autistic children in Johannesburg. It's for use in a one-to-one lesson where the client develops motor skills by pointing to letters on a letterboard.

i-asc.org/wp-content/upl…
These children would normally have been in SEN schools where their movement issues were misinterpreted as deliberate misbehaviour, or a sign of intellectual impairment.
Read 48 tweets
5 May
Yep. And like other communities, we fight, disagree, and have divergent opinions, besides our divergent experiences. And that also means that you have to stop trying to find that one person or united voice to represent us, but listen to MANY of us, many orgs, and see the trends.
Marginalised subgroups include:

African autistic people IN AFRICA.

Do you even know the name of any Black African autistic activist who lives in the continent of Africa?

#INSAR2021
Hey, #INSAR2021 researchers, those who specialise in researching what helps nonspeaking autistic people with high support needs:

Who are your favourite nonspeaking autistic activists, and how have they informed your work?
Read 6 tweets
5 May
Us: Listen to autistic people.

Them: No, you're adults. Our research is about children.

Us: We were once children, and we care about children.
Them: These children aren't like you. They can't go on the Internet and type.

Us: When we were children we didn't go on the Internet and type either.

Them: OK, but these children don't speak.

Us: We're not speaking now either, we're typing.
Them: These children don't EVER speak, and they hit their head against the wall.

Us: Yep, sounds like some of us.

Them: If you can type, you're too high-functioning to understand.

Us: Listen to yourself.

#BoycottAutismResearch
#ListenToNonspeakers
#NothingAboutUsWithoutUs
Read 4 tweets
5 May
I don't want the research you people do saying "ABA works" implemented.

You set the goals, you create the hypothesis, you design the study, you interpret the results and you conclude that "ABA works".

My community won't help you implement your research.

#BoycottAutismResearch
Do you know what that phrase "evidence-based" has come to stand for among autistic people?

The ABSENCE of evidence of respect for human rights.

#BoycottAutismResearch
Renounce ABA, #INSAR2021. I dare you cowards.

Help us get nonconsensual ABA banned.

#ListenToNonspeakers. Stop silencing them. You're ACTIVELY doing right now.

If you don't start respecting #HumanRights in research, we will up the campaign to #BoycottAutismResearch.
Read 21 tweets
4 May
Thanks to lobbying by nonspeaking autistic people and their allies, professionals who work with autistic people in South Africa are becoming increasingly aware of apraxia as a major factor in the struggles of autistic people with high support needs.
Apraxia is a problem with purposeful movement. In nonspeaking autistic people, this typically affects the whole body. Many nonspeakers call it the body-mind disconnect or the brain-body disconnect.
A variety of methods help nonspeaking autistic people learn better control of their movements. Some of these methods, such as Spelling to Communicate, involve prompting, i.e. guiding an apraxic person through simple instructions to help them learn control.
Read 18 tweets
3 May
To ABA therapists who say, "OMG, I don't do what the Judge Rotenberg Center does!":

Renounce your RBT or BACB credential.

The BACB accredits the people who work at the Judge Rotenberg Center with the same BACB credential.

You should be ashamed that you wear the same letters.
Sorry. BCBA or RBT. πŸ˜‘ You know what I mean.
Scared of losing your job? Yeah, that could happen.
Read 19 tweets

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