Discover and read the best of Twitter Threads about #NothingAboutUsWithoutUs

Most recents (9)

[THREAD] I want to tell you about Spelling to Communicate, a method for non-speaking autistic communication that I helped to bring to South Africa along with Nicola Sowah (a speech & language therapist) and Luli Carillo (mother of non-speaking autist Leonardo).
Spelling to Communicate (S2C) teaches individuals with motor and sensory differences the purposeful motor skills necessary to spell to communicate. Motor skills progress along an increasingly complex hierarchy from pointing to letters to typing independently on a keyboard.
The goal is to achieve synchrony between cognition and motor.
Read 49 tweets
The Autism CARES Act is a $3.1 billion funding package that gives exactly zero dollars to any autistic-lead groups or initiatives.
That is billion with a “b.” Not a typo.

You’d think the government could at least throw some pocket change at self-advocacy organizations.
It’d be extremely cool if the Senate would throw a bone at #ActuallyAutistic-lead initiatives, projects, and organizations, but I’m not holding my breath.
Read 8 tweets
Pulling some important quotes from (thesis-related) close reading of the @autselfadvocacy Navigating College handbook. #AutisticsInAcademia #helenreads
“Remember one thing: You made it to college because you have potential. You are in college because you demonstrated capability to get here.” -Samantha April Davis, Worth
“Consider applying to the disability office under a related condition, such as anxiety.” -Samantha April Davis, Self Accommodation

This is crucial for people who are self-dx and/or don’t have current documentation of certain disabilities.
Read 16 tweets
The biggest focus area for #autismawareness should be awareness of the principles embodied in the #CRPD.

Do #nothingaboutuswithoutus.

While you exclude both speaking and non-speaking autists from your decisions, you commit human rights abuses whether you realise it or not.
If people in the autism industry stopped violating the #CRPD, we would see:

- the end of harmful practices and substances masquerading as therapy and (ABA, Le Packing, MMS etc.)

- autistic people driving the priorities of autism research

- nonspeakers' access to communication
We have to stop excluding nonspeakers' inputs from these conversations.

Making them the excuse for not listening to autistic people who speak, while you pay ZERO attention to THEIR actual words means you respect neither group.
Read 9 tweets
While it's nice to see @Spectrum talk to #ActuallyAutistic voices, there are a couple of important factual errors and (I assume) inadvertent misrepresentations in this piece. Thread to follow.
First, because it's most important, the federal rules referenced here don't say anything about the size of the setting people live in - instead, they talk about the rights people have within a particular setting: medicaid.gov/medicaid/hcbs/…
I can understand how the author may have been confused on this point, since NCSA and other opponents of federal regulation in this space have repeated that (false) talking point frequently, but the actual text of the rule makes no reference to size.
Read 29 tweets
What’s that you say? I haven’t tweeted in a few days about this AMAZING JOB w @AutisticaUK & @turinginst that I’d love for you to apply for or share with anyone you know?

GO ON THEN. A thread about our values and project outcomes! 🌟🙌🏿🙌🏾👩🏻‍💻👩🏿‍💻👨🏼‍💻👨🏾‍💻😬🥰💖🥳

turing.ac.uk/work-turing/re…
The values are attached as a pdf to the job description linked above. Here’s the direct link: turing.ac.uk/sites/default/…

Before I dig into them I want to give a quick shout out to Georgia Aitkenhead who wrote the first draft based on our long conversations. THANK YOU Georgia!
The values are only loosely ordered. Don’t read too much into which ones come first etc. They’re ALL important.

When you apply for the job PLEASE address the values in your cover letter. It’s an essential requirement that you have a commitment to these values.
Read 18 tweets
I just met a dad and his autistic son. Behaviors which had puzzled the dad for years I was able to instantly translate. It reinforced my frustration with the foundational things routinely missed by the autism industry - and why every autism entity NEEDS to hire autistic staff.
He told his son to say hi to me and the son whispered “Nooo!” and walked passed me. “I don’t know why he does that,” the dad said.

Me: “Often, placing sudden attention on us and putting us on the spot to do something can feel hugely uncomfortable. It’s a normal response.”
The Dad: “This is great advice. I wish he has listening to this.”

Me: “Oh, he’s listening. You’re listening to this, right?”

Voice of a kid hidden around the corner: “Yes!”
Read 12 tweets
In #FordNation's backlash dystopia, #OpioidSymposium2018 kicks off. @CAPUD2016 @momsstoptheharm, me & many others present tomorrow. Will ON minister of health @celliottability decide we "have merit" and drop by? Watch the livestream tomorrow to find out: meetview.com/opioidsympo201…
Rally for Overdose Prevention Sites. Let's tell those Ford Nation deniers that OPSs "have merit." Help or get out of the way. Tomorrow. 12:30. Toronto. Outside of #OpioidSymposium2018 @TorontoOPS facebook.com/events/2127825…
#OpioidSymposium2018 live streaming now in TO. Drug users sitting at the front. Represent! meetview.com/opioidsympo201…
Read 67 tweets
So excited to spend my afternoon at the #TransHealthLeeds book launch! First up: what is dysphoria, with Zowie Davy and Michael Toze
"I hope there's not many psychiatrists in the room, because you're going to get bad press today" 😂
Language in trans medicine becomes "a truism without substance" and is used to exert control over trans people and their transition
Read 22 tweets

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