Your funders pay for research which #ActuallyAutistic people didn't ask for, while the things we WANT researched don't get researched, and now you want "the community" to help you implement what we didn't ask for.
Oh, I know #NotAllResearchers at #INSAR2021 are pro-ABA. But the noobs can't exactly walk up to the Old Guard and say, "You're a collaborator in crimes against humanity and you have to stop RIGHT NOW and renounce your past work and endorsements publicly" because politics.
So you're ALL part of the problem.
To remain a Respected Autism Scientist, you have to stay calm and write in nice academic language in peer-reviewed journals, because you are not allowed to write in blood-red dripping graffiti, "STOP TORTURING CHILDREN".
My community does not want to partner with your community to implement your human rights violations.
Waiting for someone to point out that "some research should be implemented because it helps people and doesn't violate human rights".
Great, so you're going to create another ethics team consisting of non-autistic people (plus a few token autistics, deffffinitely no nonspeakers) to adjudicate this? The same way your ethics committees wherever you work usually approve human rights violations?
#INSAR2021 can't afford to support a #BanABA campaign or to #ListenToNonspeakers, because the autism industry is so heavily invested in selling ABA and in silencing nonspeakers that it could put reputations, relationships and funding in jeopardy.
What's a likely thing they'll do at #INSAR2021? Magnanimously announce that from next year they are standardising on saying 'autistic' (to fool autistic people into thinking there's progress).
Yep. And like other communities, we fight, disagree, and have divergent opinions, besides our divergent experiences. And that also means that you have to stop trying to find that one person or united voice to represent us, but listen to MANY of us, many orgs, and see the trends.
Thanks to lobbying by nonspeaking autistic people and their allies, professionals who work with autistic people in South Africa are becoming increasingly aware of apraxia as a major factor in the struggles of autistic people with high support needs.
Apraxia is a problem with purposeful movement. In nonspeaking autistic people, this typically affects the whole body. Many nonspeakers call it the body-mind disconnect or the brain-body disconnect.
A variety of methods help nonspeaking autistic people learn better control of their movements. Some of these methods, such as Spelling to Communicate, involve prompting, i.e. guiding an apraxic person through simple instructions to help them learn control.
It's #EDSAwarenessMonth and I am one of those people who bizarrely feels like I don't 'deserve' a diagnosis because I don't have a full house of Beighton symptoms and I am not as badly off as my friends, even though I subluxate my shoulders every night, live in constant pain...
...and have been worried for the last five years that I may dislocate my jaw.
Right now I am fundraising for a woman in my city whom I have never met who is dying from the cascade of health issues that comes from being medically gaslighted for so long (even though she worked in a hospital before)...
SUICIDE RISK: 3 6-year-old Autistic guy in Denver, Colarado. He's being evicted and he can't cope. He has nowhere to go. Couldn't earn enough for rent, couldn't find a place to stay. Who should he contact please? It's urgent.
That's 36, not 6.
I'm not American, but I have known him for many years, then lost contact. I now appear to be the only person left he's talking to. I said the @TheArcUS and @NationalADAPT may be able to help but I don't know if they do crisis help. Who should he contact? It's urgent.