Yep. And like other communities, we fight, disagree, and have divergent opinions, besides our divergent experiences. And that also means that you have to stop trying to find that one person or united voice to represent us, but listen to MANY of us, many orgs, and see the trends.
Marginalised subgroups include:

African autistic people IN AFRICA.

Do you even know the name of any Black African autistic activist who lives in the continent of Africa?

#INSAR2021
Hey, #INSAR2021 researchers, those who specialise in researching what helps nonspeaking autistic people with high support needs:

Who are your favourite nonspeaking autistic activists, and how have they informed your work?
Hey, #INSAR2021 biologists, who are the #ActuallyAutistic people who have brought research requests to the table in respect of your discipline, and what was it that they wanted researched?

How many of those projects have you undertaken and completed?
What are the steps that other autistic people must take to have research done in the discipline of biology?
I did ask a biologist, but apparently that question is a grave faux pas. Do you maybe have a social story for me on who or how to ask?

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More from @ekverstania

5 May
Us: Listen to autistic people.

Them: No, you're adults. Our research is about children.

Us: We were once children, and we care about children.
Them: These children aren't like you. They can't go on the Internet and type.

Us: When we were children we didn't go on the Internet and type either.

Them: OK, but these children don't speak.

Us: We're not speaking now either, we're typing.
Them: These children don't EVER speak, and they hit their head against the wall.

Us: Yep, sounds like some of us.

Them: If you can type, you're too high-functioning to understand.

Us: Listen to yourself.

#BoycottAutismResearch
#ListenToNonspeakers
#NothingAboutUsWithoutUs
Read 4 tweets
5 May
I don't want the research you people do saying "ABA works" implemented.

You set the goals, you create the hypothesis, you design the study, you interpret the results and you conclude that "ABA works".

My community won't help you implement your research.

#BoycottAutismResearch
Do you know what that phrase "evidence-based" has come to stand for among autistic people?

The ABSENCE of evidence of respect for human rights.

#BoycottAutismResearch
Renounce ABA, #INSAR2021. I dare you cowards.

Help us get nonconsensual ABA banned.

#ListenToNonspeakers. Stop silencing them. You're ACTIVELY doing right now.

If you don't start respecting #HumanRights in research, we will up the campaign to #BoycottAutismResearch.
Read 21 tweets
4 May
Thanks to lobbying by nonspeaking autistic people and their allies, professionals who work with autistic people in South Africa are becoming increasingly aware of apraxia as a major factor in the struggles of autistic people with high support needs.
Apraxia is a problem with purposeful movement. In nonspeaking autistic people, this typically affects the whole body. Many nonspeakers call it the body-mind disconnect or the brain-body disconnect.
A variety of methods help nonspeaking autistic people learn better control of their movements. Some of these methods, such as Spelling to Communicate, involve prompting, i.e. guiding an apraxic person through simple instructions to help them learn control.
Read 18 tweets
3 May
To ABA therapists who say, "OMG, I don't do what the Judge Rotenberg Center does!":

Renounce your RBT or BACB credential.

The BACB accredits the people who work at the Judge Rotenberg Center with the same BACB credential.

You should be ashamed that you wear the same letters.
Sorry. BCBA or RBT. 😑 You know what I mean.
Scared of losing your job? Yeah, that could happen.
Read 19 tweets
1 May
It's #EDSAwarenessMonth and I am one of those people who bizarrely feels like I don't 'deserve' a diagnosis because I don't have a full house of Beighton symptoms and I am not as badly off as my friends, even though I subluxate my shoulders every night, live in constant pain...
...and have been worried for the last five years that I may dislocate my jaw.
Right now I am fundraising for a woman in my city whom I have never met who is dying from the cascade of health issues that comes from being medically gaslighted for so long (even though she worked in a hospital before)...
Read 17 tweets
30 Apr
SUICIDE RISK: 3 6-year-old Autistic guy in Denver, Colarado. He's being evicted and he can't cope. He has nowhere to go. Couldn't earn enough for rent, couldn't find a place to stay. Who should he contact please? It's urgent.
That's 36, not 6.
I'm not American, but I have known him for many years, then lost contact. I now appear to be the only person left he's talking to. I said the @TheArcUS and @NationalADAPT may be able to help but I don't know if they do crisis help. Who should he contact? It's urgent.
Read 23 tweets

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