1. What people refer to as ‘personality disorder’ in terms of ‘emotional dysregulation’ is interesting. Rather than dysregulation, I’ve noticed a lot of people appear to have a highly sensitive, finely tuned reception to other people’s emotional communication. Not everyone of >
2. course, that would be a massive generalisation. But a lot of people can sense or have intuition of when something feels wrong, or a persons mood is good or bad. Much is likely to have come from early childhood experiences where this skill kept some people safe. It’s less of >
3. a mystical power, more of a supernatural skill that has been developed. But it doesn’t mean that the emotional communication your highly sensitive instrument can be read or interpreted accurately. The emotional data given by the other person when learning the skills as a >
4. child may have come from a very different place to the person giving the emotional data as an adult. Not every person who gives criticism will be putting you down, being abusive etc. The other issue is that however you feel about yourself getting in the way too. So if you >
5. feel unloveable, or of little worth, then all the fine tuning can be seen through those lenses too. The thing that most people miss is that there is such a wealth of information in the sensitive instrument that some people develop. It can be used in ways that can give an >
6. advantage. I find it useful in some forms of consultancy, when emotional data is useful and helps me understand situations better in an organisation. If it’s a personal situation, or presses painful buttons that are currently raw, it is still helpful but the interpretation >
7. can be less reliable, and takes more thought. It’s easier if there is that buffer there. This may seem like a bit of a random thread, but I wonder sometimes at the way ‘personality disorder’ gets pathologised and how things that are different and that have the potential to >
8. be a positive thing, or even a superpower, if nurtured. I think I’m extra aware of this atm, on so many different levels. It applies to us as #LXPs if we work in this way, it applies to the working relationships we have, where we are often infantilised, >
9. left out of decisions, workstreams, left out of social interactions or friendships at work. It would be easy to think that is very personal, but in the #LXP Research Study, this theme came out over and over again. It’s also something that needs to be better understood >
10. because it isn’t written about much, there’s not much research out there on it - who expects crazy people with a #BPD diagnosis to work, and if they do, surely it’s normal to treat them differently to other people? Anyway, today I’ve been thinking about it, and it hurts.
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More from @tamar_whyte

9 May
1. This is the reality of the toll that mental health activism takes on campaigners. Campaigns often have to be done at the last minute, where issues are only discovered after the publication of an evaluation, shortly before a deadline to public responses, or to stop a roll out >
2. What people don’t see under all the protest is the toll the protest takes. Bethan’s presence on Twitter is a strong, formidable force - an intimidating wealth of knowledge that busts a hole in the shitshows that pass for involvement. People don’t see the the toll that >
3. level of head over the parapet takes. In addition to the mental gymnastics of reading and interpreting complex shit, breaking it down to its basics and then reapplying principles to it to working out the gaps and building up a robust counter argument, there is the emotional >
Read 21 tweets
29 Apr
1. The stress that ‘co-production’ takes when power is unequal is highly distressing for the party with lesser power in the partnership, particularly over long periods of time where the power imbalance is sustained and there is no action to remedy this. When power is abused by >
2. ensuring that decisions about LX practice or services can never be made by the Lived Experience Professional in the room, that you take those decisions outside of the room, this causes distress and harm. The harm caused by the abuse is used an example of why #LXPs are >
3. described as ‘vulnerable’, or prone to going off sick. Let’s just be very plain speaking about this - LXPs aren’t vulnerable. They are warriors who have been through wars. What they are is people who already have battle wounds, coming into workplaces that will particularly >
Read 13 tweets
8 Apr
#EpilepsyTwitter, I have a question for you! Does anyone ever experience a feeling like an electrical pulse, or what can feel like an electrical jolt, but that isn’t accompanied by a jerk? Not a myoclonic jerk you would normally associate with #epilepsy, but a similar feeling >
> without the jerk itself, and no micro loss of consciousness. I usually feel it in my forearms or legs, but sometimes in my lower back. I described it to the nurse who runs the #epilepsy clinic, she hadn’t heard of it before. I think she is wondering if it it not epileptic, >
> but more anxiety based. As I’ve been writing this Tweet I’ve had a small one in the top of my arm and in the side of my back. Sometimes it can be accompanied by feeling sleepy. No loss of consciousness though. If I had to describe what I thought it was, it feels like >
Read 4 tweets
7 Apr
1. Has anyone else had problems with @IrregularChoice jewellery? I ❤️ the designs so much, but when my #Kittynaut necklace arrived the clasp came off as soon as I took it out the box! I was annoyed because it was so f* expensive for costume jewellery but thought sod it I’ll just> Image
2. put it back on myself. Then I wore it once and it came apart, but I loved it & there were no more and so I botched it together, wore it once more & it totally fell apart 🤬 Then I fell for the #IrregularChoice Smile necklace in the sale, second time I wore it, it fell apart > Image
3. Again, #IrregularChoice jewellery is damn expensive even in the sale so I thought I’d better complain this time but having had such bad health recently with low mood just couldn’t face it... crazily to cheer myself up I very stupidly ordered their Pink Poodle earrings. Yes, > Image
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16 Feb
Since I’ve been doing these, I get messages from ppl ‘off the record’ who either need to reach out for support or who reach out to provide support. I’ve found the hardest thing is being treated with such different levels of respect in different contexts. Does anyone else >
> experience this? What I’ve found is that as I’ve had expertise recognised and respected in some contexts, the contexts in which it is disrespected somehow go from being upsetting to unbearable. As you raise the fact that what you are experiencing is discriminatory & >
> disrespectful, and you have it ignored time and time again, you go from being able to give the benefit of the doubt, of being able to put what is happening down to ignorance, to starting to realise that it can no longer be ignorance. So what is it? Is it maliciousness? >
Read 16 tweets
14 Feb
This reminds me of the time I was part of an art exhibition in Schloss Hartheim in Austria. The palace had been used as a gas chamber in by Nazis to murder disabled people & ppl with learning difficulties, so it was now an institute to take care of ppl with learning difficulties>
> The palace was beautiful but such an ugly, evil thing had been done there. The downstairs was a museum that remembered what had been done. Upstairs was the art gallery, where work of disabled artists was shown. There was a custom built, beautiful building next door, where >
> residents lived, and appeared to have a much happier life in comfortable surroundings where they were free to create. The ugliness of the past was remembered though, alongside the progress of the future, a memorial to prevent the same thing happening again. >
Read 5 tweets

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