1. I am so, so proud of my fellow Mad activists/allies & supporters who came to a board meeting to support a collective of us raising concerns about #LXP working during public questions. There were ten of us altogether. We had come together in the space of a week, identified >
2. shared concerns about career blocking, exploitation, deliberate exclusion of LXP staff. We gave the recent secretly turned away funding for an #LXP senior post as an example. We had three people scheduled to ask questions, but - and u couldn’t make this shit up... >
3. The third presenter, who was due to ask questions on staff wellbeing wasn’t able to due to being hospitalised over the weekend with a suspected stroke. Being mad is stressful, unfortunately. Instead, two of us covered their section. We left feeling good that the questions we >
4. asked would now be public record. Now nobody at an ultimate accountability level can state that they are unaware of #LXP issues. I left feeling buzzing, went on to smash a seminar presentation, and then it hit me. I can barely move. There was also the impact of >
5. self-disclosure. I don’t normally do that but I wanted to try and get some understanding of the real world, real life impact decisions can have on people. I bared a vulnerable part of my soul. It’s hard doing that, then gauging responses. For me was particularly difficult >
6. then having to hear that these issues are simply a case of differences of opinions, where LXPs differ from their overlords and masters, whose opinions must then prevail. The anger was palpable as people rightly questioned (away from the boardroom stage) exactly why >
7. professional advice based on literature, evidence base, case studies, experience, knowledge and qualifications was being referred to as an opinion, and why the prevailing opinion never had to justify or explain itself. What evidence base was it relying on? What experience? >
8. What about the advice of national bodies that have been ignored - are these too classed as opinions? I hear this daily, it was refreshing to hear the same when with supportive allies who were able to question the obvious fallacies in the logic. The biggest one being - even >
9. if this were a difference of opinion, whose opinion should prevail? If decisions and funding are for LXPs, surely the opinions of non-LXP staff are secondary and should not have the final say in decision making? The initial indignation and anger has subsided to tiredness, >
10. exhaustion and the cost of emotional labour. There is sadness in examining some faces and seeing nothing. No emotion. No flicker of care or concern in expression, voice or speech. There were people whose lives may have been cut short thanks to these issues who were part of >
11. the meeting. As one of them, it felt indescribable knowing I am of no worth. Had this happened, I would have been an invisible casualty. If I’d been hit on the head with a roof tile and died that would be cut and dried. But if you are mad, you are of no consequence. >
12. I don’t know how my #LXP colleagues who this also applied to felt about this specific thing. But I know it adds an additional painful slant to what was already a big, scary thing to do. I’m so tired. I’d recommend doing this - it gets issues into public documents. But take >
13. care of yourself, do it with other ppl, share the load where you can. I’m so tired. I gotta sleep methinks. The rest of the crew are shattered too. Thanks again to all of the supporters who showed up too - you know who you are! ❤️❤️❤️
@threadreaderapp please unroll ☺️
Thanks for RT @Al_Richards_786 - and we really, really appreciated your support today by attending the board meeting and giving us your thoughts and observations afterwards. They were very much valued 🙏🏽🥰❤️

• • •

Missing some Tweet in this thread? You can try to force a refresh

Keep Current with Tamar Whyte-Jeynes 👖

Tamar Whyte-Jeynes 👖 Profile picture

Stay in touch and get notified when new unrolls are available from this author!

Read all threads

This Thread may be Removed Anytime!


Twitter may remove this content at anytime! Save it as PDF for later use!

Try unrolling a thread yourself!

how to unroll video
  1. Follow @ThreadReaderApp to mention us!

  2. From a Twitter thread mention us with a keyword "unroll"
@threadreaderapp unroll

Practice here first or read more on our help page!

More from @tamar_whyte

18 May
1. What people refer to as ‘personality disorder’ in terms of ‘emotional dysregulation’ is interesting. Rather than dysregulation, I’ve noticed a lot of people appear to have a highly sensitive, finely tuned reception to other people’s emotional communication. Not everyone of >
2. course, that would be a massive generalisation. But a lot of people can sense or have intuition of when something feels wrong, or a persons mood is good or bad. Much is likely to have come from early childhood experiences where this skill kept some people safe. It’s less of >
3. a mystical power, more of a supernatural skill that has been developed. But it doesn’t mean that the emotional communication your highly sensitive instrument can be read or interpreted accurately. The emotional data given by the other person when learning the skills as a >
Read 11 tweets
9 May
1. This is the reality of the toll that mental health activism takes on campaigners. Campaigns often have to be done at the last minute, where issues are only discovered after the publication of an evaluation, shortly before a deadline to public responses, or to stop a roll out >
2. What people don’t see under all the protest is the toll the protest takes. Bethan’s presence on Twitter is a strong, formidable force - an intimidating wealth of knowledge that busts a hole in the shitshows that pass for involvement. People don’t see the the toll that >
3. level of head over the parapet takes. In addition to the mental gymnastics of reading and interpreting complex shit, breaking it down to its basics and then reapplying principles to it to working out the gaps and building up a robust counter argument, there is the emotional >
Read 21 tweets
29 Apr
1. The stress that ‘co-production’ takes when power is unequal is highly distressing for the party with lesser power in the partnership, particularly over long periods of time where the power imbalance is sustained and there is no action to remedy this. When power is abused by >
2. ensuring that decisions about LX practice or services can never be made by the Lived Experience Professional in the room, that you take those decisions outside of the room, this causes distress and harm. The harm caused by the abuse is used an example of why #LXPs are >
3. described as ‘vulnerable’, or prone to going off sick. Let’s just be very plain speaking about this - LXPs aren’t vulnerable. They are warriors who have been through wars. What they are is people who already have battle wounds, coming into workplaces that will particularly >
Read 13 tweets
8 Apr
#EpilepsyTwitter, I have a question for you! Does anyone ever experience a feeling like an electrical pulse, or what can feel like an electrical jolt, but that isn’t accompanied by a jerk? Not a myoclonic jerk you would normally associate with #epilepsy, but a similar feeling >
> without the jerk itself, and no micro loss of consciousness. I usually feel it in my forearms or legs, but sometimes in my lower back. I described it to the nurse who runs the #epilepsy clinic, she hadn’t heard of it before. I think she is wondering if it it not epileptic, >
> but more anxiety based. As I’ve been writing this Tweet I’ve had a small one in the top of my arm and in the side of my back. Sometimes it can be accompanied by feeling sleepy. No loss of consciousness though. If I had to describe what I thought it was, it feels like >
Read 4 tweets
7 Apr
1. Has anyone else had problems with @IrregularChoice jewellery? I ❤️ the designs so much, but when my #Kittynaut necklace arrived the clasp came off as soon as I took it out the box! I was annoyed because it was so f* expensive for costume jewellery but thought sod it I’ll just> Image
2. put it back on myself. Then I wore it once and it came apart, but I loved it & there were no more and so I botched it together, wore it once more & it totally fell apart 🤬 Then I fell for the #IrregularChoice Smile necklace in the sale, second time I wore it, it fell apart > Image
3. Again, #IrregularChoice jewellery is damn expensive even in the sale so I thought I’d better complain this time but having had such bad health recently with low mood just couldn’t face it... crazily to cheer myself up I very stupidly ordered their Pink Poodle earrings. Yes, > Image
Read 11 tweets
16 Feb
Since I’ve been doing these, I get messages from ppl ‘off the record’ who either need to reach out for support or who reach out to provide support. I’ve found the hardest thing is being treated with such different levels of respect in different contexts. Does anyone else >
> experience this? What I’ve found is that as I’ve had expertise recognised and respected in some contexts, the contexts in which it is disrespected somehow go from being upsetting to unbearable. As you raise the fact that what you are experiencing is discriminatory & >
> disrespectful, and you have it ignored time and time again, you go from being able to give the benefit of the doubt, of being able to put what is happening down to ignorance, to starting to realise that it can no longer be ignorance. So what is it? Is it maliciousness? >
Read 16 tweets

Did Thread Reader help you today?

Support us! We are indie developers!

This site is made by just two indie developers on a laptop doing marketing, support and development! Read more about the story.

Become a Premium Member ($3/month or $30/year) and get exclusive features!

Become Premium

Too expensive? Make a small donation by buying us coffee ($5) or help with server cost ($10)

Donate via Paypal Become our Patreon

Thank you for your support!

Follow Us on Twitter!