The literature tells us autism cannot be divided. Others, including @HappeLab have written about it (admittedly outside PDA literature for Happe).
@HiggsMandy@HappeLab I have written about it, inside and outside PDA literature, citing @HappeLab. I am unsure why she does not writen about it in PDA literature. Best guess, is that it undermines the case for PDA being autism?
@HiggsMandy@HappeLab Me covering PDA, how anxiety is not a feature of autism. How it is impossible to divide autism. As written in a co-authored book by @HappeLab. @Kabieuk discusses the common view of autistic persons not wanting autism to be divided on page 47.
@HiggsMandy@HappeLab@Kabieuk@HappeLab has a COI on the issue, as she stands to benefit by not mentioning such information. If you say all other attempts to divide autism have failed & most autistic persons do not want autism to be divided, it raises awkward for viewing PDA as an ASD.
@HiggsMandy@HappeLab@Kabieuk "Despite enthusiasm from parents and those with lived experience, the concept of PDA has sparked disagreement and debate (O'Nions et al 2021, p2).
@HiggsMandy@HappeLab@Kabieuk@HappeLab cannot write that sentence quoted about those autistic persons identifying with PDA being enthusiastic about PDA. As those who supported Asperger's inclusion in DSM-5 were ignored, precedent has been set.
"largely driven by advocacy work by parentled organizations and those with lived experience." (O'Nions et al, p2).
@HiggsMandy@HappeLab@Kabieuk Which is why my best guess is that @HappeLab has not included in their PDA literature, because undermines the research agenda to make PDA an ASD.
One can argue Happe has benefitting from this information not being included their PDA articles.
@HiggsMandy@HappeLab@Kabieuk@HappeLab If you want another example where minority autistic views are ignored, look no further than debates of using person first language in autism. Consensus among those supporting neurodiversity & autistic persons is for identity first language.
@HiggsMandy@HappeLab@Kabieuk Yet obviously such important points are what? Ignored/ missed/ not considered important by @HappeLab their PDA scholarship?
As I said, either way not a good look for not covering it.
@Neurodiversit19 I think you comment about, who would like to employ someone with a "pathological" resistance to "ordinary" demands is probably valid. While we do not have data from work (off the top of my head, we do have some data from schools).
@Neurodiversit19 Some research indicates a PDA dx does not decrease exclusion rates and seems to raise number of informal exclusions.
@Neurodiversit19 "However, children with a diagnosis of Pathological Demand Avoidance did experience more informal exclusions (sometimes called “illegal exclusions”) than those autistic children who did not display extreme demand avoidance." Truman, 2019, p9)
Sigh, I do not know where to begin with this. In my view Christie should be a controversial figure worldwide, especially in the autism community for undermining integrity of autism, disregarding autistic wishes for not dividing autism. autismlearns.co.uk/understanding-…
For spreading fallacious logic, ignoring Newson's wishes that PDA not be an ASD. Arguing to maintain the integrity of his own version of PDA. Generally, not engaging with critique. Also calling for research to support their outlook PDA is an ASD.
Ignoring how autism history tells us PDA does not have to be ASD, and that it can easily change clinical understandings and broaden.
Studies showing PDA is seen outside of autism:
Absoud 2019.
Eaton 2018.
Egan et al 2019.
Flackhill et al 2017.
Newson et al 2003.
O’Nions et al 2014a.
O’Nions et al 2014b.
O’Nions et al 2015.
O’Nions et al 2016.
Reilly et al 2014.
EDA-Q was used as part of assessment process.
Three groups: Autism, Autism + PDA, & Other (Trauma related issues).
EDA-Q detected PDA in all three groups.
@SusieBass Being honest, I do not where to begin. The issues with much of PDA narrative is systemic.
As I twitted earlier today are many good reasons for not even viewing PDA as a form of autism. Much/ most of critique of PDA seems valid.
@SusieBass I mean if literature does not justify viewing PDA as an ASD in 2011. The scientific and ethical response, is not to pursue an agenda that tries to create evidence base to view PDA as an ASD. Just so much of it is bonkers.
@SusieBass Another example. So PDA is an ASD supporters often compare growth in PDA, vs historic growth of autism, commenting on comparable milestones. To me comparing Autism's history to PDA is a silly thing to do if you want PDA to be an ASD.